Sunday October 14, 2012
Aaron was discharged around 7pm tonight. I am so glad that he is feeling better, but something is still off with him. He has a neuro appt this week and sees Dr C next week. My poor baby has been so constipated since he started his new med and vitamin with Iron. He had to have a glycerin chip and it did not work. He then had to have a enema and he was not a happy little boy. He was so mad and boy can he hold a grudge!!. It took him about 45 minuted before he would even let me pick him up. He had a scowl on his face for the longest time. He is so funny and has so much personality. I love this little boy!! Hopefully he will continue to get better and we will stay out of the hospital.
feeling better!!!!
Tuesday, October 16, 2012
Peds floor
Sunday October 14, 2012
Aaron is doing better and is now on the regular peds floor. He is still sleeping a lot but he looks so much better. He is keeping his temp up without the warmer and he has started to drink. He is still getting his antibiotic (rocefen) and his solu cortef. He is still not feeling so well, he hasn't even tried to pull out his IV. He has been awake a little more today but he hasn't wanted to sit up and play. Something is off with him, I can't explain it I just know something is not right with Aaron. I love his pediatrician. Dr C. even called (he was not on call this weekend) just to see how Aaron was doing. Dr W (on call Dr) said he said he was worried about Aaron and just wanted me know that he had called. This is such a great group of Drs and I feel very lucky to have them treating all of my boys.
Aaron is doing better and is now on the regular peds floor. He is still sleeping a lot but he looks so much better. He is keeping his temp up without the warmer and he has started to drink. He is still getting his antibiotic (rocefen) and his solu cortef. He is still not feeling so well, he hasn't even tried to pull out his IV. He has been awake a little more today but he hasn't wanted to sit up and play. Something is off with him, I can't explain it I just know something is not right with Aaron. I love his pediatrician. Dr C. even called (he was not on call this weekend) just to see how Aaron was doing. Dr W (on call Dr) said he said he was worried about Aaron and just wanted me know that he had called. This is such a great group of Drs and I feel very lucky to have them treating all of my boys.
ICU
Saturday October 13, 2012
Aaron is in the ICU. I woke him up this morning (very unusual since he is always up early) and he was so cold and lethargic. I called and took him right in to see the Dr. His heart rate was down and his temp was only 92.8. He was taken right to the PICU. My poor little boy does not feel well. He is getting lots of antibiotics and had some labs done. Once they get his labs back they will decide what needs to be done but for now he is getting his Solu Cortef and on a warmer blanket. I hate not being able to hold him but he needs to warm up a lot before I can get him out of bed. Hopefully I will be able to cuddle and love on my sweet little angel soon.
Aaron is in the ICU. I woke him up this morning (very unusual since he is always up early) and he was so cold and lethargic. I called and took him right in to see the Dr. His heart rate was down and his temp was only 92.8. He was taken right to the PICU. My poor little boy does not feel well. He is getting lots of antibiotics and had some labs done. Once they get his labs back they will decide what needs to be done but for now he is getting his Solu Cortef and on a warmer blanket. I hate not being able to hold him but he needs to warm up a lot before I can get him out of bed. Hopefully I will be able to cuddle and love on my sweet little angel soon.
Friday, October 12, 2012
My talk with the principal
Friday October 12, 2012
I had a talk with the principal about the events of yesterday, I guess it is just me becuase he didn't really see it as a problem. He stated the parents are comfortable with the way the children are dealt with and that he could not get into specifics about another child's plan. I told him I was well aware of children and their care plans as I had worked in a residential teatment facility for close to 9 years. I told him what was unacceptable was an adult in a childs face with their finger pointed. He told me he was sorry I was offended but that is how they deal with behaviors. I am appalled at the lack of care or concern for these children. If this is how children are treated in front of a parent what goes on in the halls or classrooms. No parent would ever think that it was ok to for someone to act that way toward their child. My child will be pulled out of the school and taught at home and my other children will not attend that school.
I will do anything for this angel
I had a talk with the principal about the events of yesterday, I guess it is just me becuase he didn't really see it as a problem. He stated the parents are comfortable with the way the children are dealt with and that he could not get into specifics about another child's plan. I told him I was well aware of children and their care plans as I had worked in a residential teatment facility for close to 9 years. I told him what was unacceptable was an adult in a childs face with their finger pointed. He told me he was sorry I was offended but that is how they deal with behaviors. I am appalled at the lack of care or concern for these children. If this is how children are treated in front of a parent what goes on in the halls or classrooms. No parent would ever think that it was ok to for someone to act that way toward their child. My child will be pulled out of the school and taught at home and my other children will not attend that school.
I will do anything for this angel
Precious gifts
Thursday October 11, 2012
I had Taevon's IEP today. Overall it went well and I am happy with his goals. I am still considering homeschooling my boys and today made it look like the best option. I feel like there is nobody standing up for kids, especially those with special needs. While I was in the office waiting for our meeting I witnessed something so sad and wrong. A little girl was brought into the office by two adults holding her under her arms. There was another adult (custodian) walking behind them. The little girl dropped to her knees once she was inside the office. The custodian asked the teacher/aide if she wanted her to call someone (a male name). The tone of her voice was not pleasant and I would never want anyone to talk like that in front of any of my children. The little girl reached her arm out to swat/slap at the teachers leg. (she was on her hands and knees and all of the adults were standing up around her). The teacher moved her leg back and she was not touched. All of a sudden the custodian got down on her knees and got in the little girls face. She had her finger pointed in this child's face. She said in "I will not let you hit (teachers name)" and continued to keep her finger in her face while starring at this child. I could not believe the tone of voice that was used and felt like she was attempting to intimidate this child. I am still wondering why a custodian is involved with the children. As a parent of 3 special needs children I have NEVER had a custodian be apart of any of my children's IEPS. I have never discussed my child's needs, wants, challenges with a custodian and I do not want them attempting to discipline my child. If that wasn't enough a few minutes later another child was brought into the office by 2 custodians (the woman from before and a male). She was placed into a room and the door was shut. The male was pleasant and did not raise his voice while the woman was still being rude. This child walked into the office without help, was quiet and calm. She went into the room with no problems and did not object when the door was closed. She stood at the door and as looking out the window. The woman asked the other custodian if she had been told to sit down in a tone that should never be used with children. The male stated she had been told that she could sit or stand. The woman says "well she can't look out the window" in the same offensive tone. The male opened the door and told this child she needed to sit down, she complied. The woman then went over and looked in the window. I was finally called back for my meeting. I had problems staying focused as I wondered about those children. Who is standing up for these children? Is anyone listening at home? Is anyone talking to the school about this? Why are they being treated like this? Why are custodians involved in the children's care? Why would someone attempt to intimidate a child? As a parent of a special needs child with behavior problems I am well aware of the frustrations/challenges of raising these special kids. But I will not allow my children to be treated in such awful way. I often wonder why some people have children. Why some parents or other family members give kids excuses for poor behavior. Is it because they don't know how to parent the child or is it just easier to give an excuse and then dismiss the behavior. In the end it is the child that will suffer if they have been allowed to act a certain way because everyone has said the can't help it for this reason or that reason. It is so sad that some people are always looking for the easy way out. It is also sad that when people have more than one child they decide they have a favorite. It disgusts me watching one child be ignored and the world revolving around the favorite and nobody stepping in for the other. My children are my whole world and I can't imagine allowing someone (boyfriend, husband, friend) calling my child names. I wish everyone would stand up for their kids and put them first. They are such precious gifts and need to be treated so much better. Children are a lot of work but so worth all of the effort. It is the most rewarding job I have ever had and I treasure each moment with all of my sweet angels.
love these boys more than anything
I had Taevon's IEP today. Overall it went well and I am happy with his goals. I am still considering homeschooling my boys and today made it look like the best option. I feel like there is nobody standing up for kids, especially those with special needs. While I was in the office waiting for our meeting I witnessed something so sad and wrong. A little girl was brought into the office by two adults holding her under her arms. There was another adult (custodian) walking behind them. The little girl dropped to her knees once she was inside the office. The custodian asked the teacher/aide if she wanted her to call someone (a male name). The tone of her voice was not pleasant and I would never want anyone to talk like that in front of any of my children. The little girl reached her arm out to swat/slap at the teachers leg. (she was on her hands and knees and all of the adults were standing up around her). The teacher moved her leg back and she was not touched. All of a sudden the custodian got down on her knees and got in the little girls face. She had her finger pointed in this child's face. She said in "I will not let you hit (teachers name)" and continued to keep her finger in her face while starring at this child. I could not believe the tone of voice that was used and felt like she was attempting to intimidate this child. I am still wondering why a custodian is involved with the children. As a parent of 3 special needs children I have NEVER had a custodian be apart of any of my children's IEPS. I have never discussed my child's needs, wants, challenges with a custodian and I do not want them attempting to discipline my child. If that wasn't enough a few minutes later another child was brought into the office by 2 custodians (the woman from before and a male). She was placed into a room and the door was shut. The male was pleasant and did not raise his voice while the woman was still being rude. This child walked into the office without help, was quiet and calm. She went into the room with no problems and did not object when the door was closed. She stood at the door and as looking out the window. The woman asked the other custodian if she had been told to sit down in a tone that should never be used with children. The male stated she had been told that she could sit or stand. The woman says "well she can't look out the window" in the same offensive tone. The male opened the door and told this child she needed to sit down, she complied. The woman then went over and looked in the window. I was finally called back for my meeting. I had problems staying focused as I wondered about those children. Who is standing up for these children? Is anyone listening at home? Is anyone talking to the school about this? Why are they being treated like this? Why are custodians involved in the children's care? Why would someone attempt to intimidate a child? As a parent of a special needs child with behavior problems I am well aware of the frustrations/challenges of raising these special kids. But I will not allow my children to be treated in such awful way. I often wonder why some people have children. Why some parents or other family members give kids excuses for poor behavior. Is it because they don't know how to parent the child or is it just easier to give an excuse and then dismiss the behavior. In the end it is the child that will suffer if they have been allowed to act a certain way because everyone has said the can't help it for this reason or that reason. It is so sad that some people are always looking for the easy way out. It is also sad that when people have more than one child they decide they have a favorite. It disgusts me watching one child be ignored and the world revolving around the favorite and nobody stepping in for the other. My children are my whole world and I can't imagine allowing someone (boyfriend, husband, friend) calling my child names. I wish everyone would stand up for their kids and put them first. They are such precious gifts and need to be treated so much better. Children are a lot of work but so worth all of the effort. It is the most rewarding job I have ever had and I treasure each moment with all of my sweet angels.
love these boys more than anything
Monday, October 8, 2012
Scooby Doo
Saturday October 6, 2012
LOVE this little boy!!
my sweet angels!
Keagan had his birthday party today. He had so much fun. He LOVES Scooby Doo and was so excited about his Scooby cake.
LOVE this little boy!!
my sweet angels!
Tuesday, October 2, 2012
Keagan
Happy 5th Birthday Keagan!!
I can't believe that you are 5! Time is going so fast. You are such a special little boy and I love you so much. Your sweet smile and cute dimples make me smile. I love your laugh and you melt my heart whenever you ask for a "hug n a dis". You my sweet boy are one of my greatest joys and I am so thankful for you. I can't imagine my life without you and I thank God everyday for you. I am excited to see all that you will accomplish this year. I love you!!
I can't believe that you are 5! Time is going so fast. You are such a special little boy and I love you so much. Your sweet smile and cute dimples make me smile. I love your laugh and you melt my heart whenever you ask for a "hug n a dis". You my sweet boy are one of my greatest joys and I am so thankful for you. I can't imagine my life without you and I thank God everyday for you. I am excited to see all that you will accomplish this year. I love you!!
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