Aaron's EKG

Wednesday February 6, 2013

Aaron had his EKG this afternoon. Nick wanted to go with us and he had the best time. The tech was great and let Nick help attach the leads and explained everything on the monitor. Nick was so excited to help and asked lots of questions. The tech could not believe the type of questions he was asking and how he was able to understand what he was learning. Aaron did fine and enjoyed all of the attention. His heart rate was low (64) so hopefully we will have the results tomorrow. I am hoping that they decide to put him on another med. This one has so many side effects and he already has so much going on I really don't want him to be on the Banzel. I am going to pray about it and trust that Dr O will make the right decision for Aaron.

Keagan's check up

Wednesday February 6, 2013

Keagan had his appointment with Dr C today. After finally finding a parking spot we made it on time.  Keagan grew 2.5 inches and gained 6 pounds. He is 42.5 inches tall and weighs 43 pounds. He was hoping to be 45 inches tall in order to ride Space Mountain at Disney World this fall. We talked about his lack of focus, trouble transitioning between activites, poor impulse control, tantrums, anger management and school. Dr C stated meds will soon be needed. I am reluctant to put him on meds but will do what is needed fro Keagan. We have a follow up appointment in May to talk about the issues, school and how he is doing. He is such a sweet boy and I just want the best for him.

overwhelmed

Whew...what a day. Got a late start this morning and just could not seem to get back on track. I am very organized but today it seemed like I could not find anything. Trying to get the kids dressed and ready for the bus, clean off the table, get Keagan to his Dr appointment and start some laundry only to find out that the dryer is not working AT ALL! REALLY? Like I have time to schedule a repairman today but it needs to be done today, with 6 people missing a day of laundry means I will be doing it on the weekend. YUCK! We were running late for the Dr and of course the parking garage is completely FULL! So after driving around what seems like forever we finally found a spot in a parking lot across the street. We finally made it to our appointment with 1 minute to spare. Keagan kept asking to walk slower..poor baby. It probably looked like I was dragging him across the streeet :) After his appointment I noticed Nicholas had left his snowpants in the backseat of the Jeep. Not only does he need snow pants today for recess he brought home someone elses snow pants. Another stop before I zip home to get Taevon off the bus. Hopefully today will slow down some. I can only hope!

seizures, another med and more tests

Tuesday February 5, 2013

Aaron is still having seizures and they have started to increase even more. He is holding his breath for longer periods of time and his mouth turns blue. I talked with Dr O's nurse and Dr O wants to add Banzel in hopes of getting his seizures under control. It can affect the heart and since he has suffered cardiac arrest and his heart rate often drops she needs to run his history by the dr before he can start. Dr O also wants a baseline EKG so he will have that tomorrow. This med makes me very nervous since he already has heart issues. I will be talking to Dr C tomorrow (Keagan has appointment) about his thoughts on this med. After all the problems with the last med I am not taking any chances. Other than the seizures he is doing really well.

                                                    LOVE his crazy curls!!!!

Snow fun

Monday February 4, 2013

Today was the last day of the kid's winter break. We had a great time and kept busy. Today Keagan wanted to play in the snow, but it was too cold for Aaron to be outside. So, I brought the snow inside. Keagan squealed when he saw his water table filled with snow! He had the best time and played with it all day. Every few minutes he would ask for more snow, I think he was eating it as fast as I was bringing it inside.

Ninja training

Sunday February 3, 2013

The boys had Ninja Training today. It was the funniest thing to watch. They had so much fun and it kept them busy all morning.

                                           ready to try out their night vision goggles

We will definitely be doing this again soon. The boys had all kinds of activities to do. They were timed, who could get through without touching any of the lasers, who could get out the most bombs, and they did it in the dark (with sunglasses on). I can't wait for summer so we can get outside and do all of the activities I have planned.

Taevon loses a tooth

Friday February 1, 2013

Taevon lost his first tooth today. I noticed it was loose a few days ago when I was brushing his teeth. Today it was just hanging by a corner. By the time I got something to pull it out he pushed it out with his thumb. He was so excited about all the attention from the boys wanting to see in his mouth he couldn't stop giggling. He has another loose tooth also on the bottom and it will probably be out in the next few days. I am so excited that I was able to see him loose his first tooth.

                                  the only picture showing his missing tooth

                                                        sweet boy