feeling better

Wednesday April 3, 2013

Aaron seems to be feeling a little better He is very weak and is not moving around a lot. I put him in his chair and he was able to sitr up for about 5 minutes. After that he would shake his head and start falling over to the side. I think I am going to do this a couple times a day and increase the time gradually. I don't want him to have to start completely over with his therapy once he is feeling better. I sure have missed his sweet smile!!

Easter

Sunday March 30, 2013

The boys slept in today. Aaron is still not feeling very well and is sleeping for most of the day. With Aaron being in the hospital everything that we usually do for Easter got pushed back to today. When they finally woke up they were so excited to see their Easter baskets. They loved everything and couldn't wait to play with their new toys.

Aaron slept all morning so we will be Celebrating Easter with him once he is feeling better. I sure did miss having all of my boys together this morning. After the boys ate their breakfast they decorated eggs. They had so much fun and Keagan was a mess at the end of the morning!!

My sweet angel is still very tired. I can't wait for him to start feeling better.

                                              love this little boy

Spring

Saturday March 29, 2013

Today the weather was great. We went outside to play and the boys had so much fun. The sidewalk chalk and the bubble machine were the favorites of the day. I can't wait for summer vacation.

peg tube

Thursday March  2013

Aaron's surgery only lasted 30 mins but it was the longest 30 mins ever. Dr S said it went great and he did end up doing a biopsy to check for reflux. He might end up having the Nissen if it shows chronic reflux. He was taken to the PICU and we were able to see him right away. The anesthesiologist said he did well and only had a issue with a very low heart rate. She gave him some meds to increase it and he was fine. He looks so peaceful sleeping and I am praying for no pain. He has Morphine ordered if he needs it, but I am hoping that he will sleep for a while. I can't wait to hold him again.  I am so thankful that there were not any complications and hopeful that this surgery will help keep him healthy. He has been through so much and I want him to start feeling better.

                                                           sweet angel

I am hoping that this heals quickly and we are able to get a button in a few weeks.

The site has to be cleaned twice a day and the tube turned once a day. I am hoping that this is not going to cause him any discomfort. Praying that the next 4 weeks go fast and we don't have any problems.

Right before we were discharged (friday) Dr Y was checking on Aaron. He was telling the nurse how he had taken care of Aaron the last 2 weeks in the PICU. I know how sick Aaron was, but hearing it from the Intensivist made it all more real. He was telling her how sick Aaron was in the PICU. That he had done a Bronchoscope and it took him a very long time to get better. I am so thankful for this amzing team of Drs taking care of my little angel.

surgery day

Thursday March

Aaron had to be at the hospital at 3pm today. He was so good in the waiting room. He loved all of the different sounds. His favorites were the doors opening and closing and the footsteps of the women in heels. He was laughing so hard.

My stomach turned as soon as they called us back to pre op. By this time he had fallen asleep and was sleeping in my arms. I hated putting him down on the bed. He woke up as soon as his head hit the pillow. Thankfully he was in a good mood.

He was awake for a few minutes then he drifted off to sleep again. I talked with Dr S and the anesthesiologist. We talked about what had happened before and some of his medical history. She said she was ready for him and would treat whatever problems he had. I made sure that he was given his first dose of Solu Cortef and that the second dose was ready on the floor. Once we had everything ready I got to hold him again. I cried when they took him from me, thankfully he was sleeping and never realized he was taken away. I can't wait for this to be over.

Follow up with Dr C

Wednesday March 27, 2013

Aaron had his follow up appointment with Dr C today. He said he looked very good. His temp and heart rate were good and his lungs were clear. We talked about his surgery and his meds. He wants to see him in a few weeks but I am to call if if something changes. I am so thankful for the amazing Drs that I gave taking care of Aaron. It makes all of this a little easier knowing that they are taking such good care of this little boy.

Surgery consult

Tuesday March  2013

Aaron saw Dr S today to discuss his upcoming sugery. He will be putting in a peg tuble that will stay in place for a few weeks. After about 4 weeks we will decide on the type of button to replace the peg tube. I am thinkibng about the Mic Key button becuase that is what Tae has, but they said there are some different ones that they are thinking of for Aaron. Aaron slept through most of the appointment. Once they put us in the exam room where it was quiet he fell right to sleep. He is so sweet..

I am very nervous about Aaron having surgery. He did not tolerate the anesthesia well the last time. I know with all of the input form all of his Drs they are taking all of the necessary precautions. I dread the moment they take him out of my arms.