Thursday October 25, 2012
Dr C came by around 4:30pm to see Aaron. He was glad to see him feeling and doing so well. He said wait to see what the Intesivist (Dr Ch) says but he thought he looked really good. So 5pm comes and goes. It is now after 6pm and we still haven't see Dr Ch. I talk to the nurse and she says that Dr Ch now says he is not on Aaron's case anymore that he signed off. WHAT!?! Dr C said Dr Ch was in charge and now Dr CH sayd Dr C is in charge. Who is taking care of my baby? The nurse was so confused and she was asking me what to do. I told her to call Dr C and let him know. She did and Dr L (on call Dr) came to see Aaron and discharged him. He kept apologizing..but it wasn't their fault. The nurses even thought Dr Ch was still in charge. Oh well he is home and doing great. He is one tough little boy. No matter how much he endures he always has a smile in the end. I love this sweet angel and am so thankful he is feeling better.
Sunday, October 28, 2012
Feeling better
Thursday October 25, 2012
My sweet baby is back. He is doing great. He has been eating and drinking all day. I haven't seen him like this for so long. He is talking, signing and following simple commands. He has been so active and has even pulled up to a stand a few times today. He has gained some more weight and he has maintained his temp with no problems. He has decided that he doesn't need his NG tube anymore and has pulled it out twice.
We are waiting for his Intensivist to come and see him so they can turn down his feeds and give him something to poop. We have been waiting for most of the day and he still hasn't come. The nurse said she called and he was supposed to be here after lunch. He was on the floor but he never saw Aaron. Now she says he will be here at 5pm. I guess they will turn his feeds dowm and maybe we will be discharged tomorrow. I was hoping it would be today.
My sweet baby is back. He is doing great. He has been eating and drinking all day. I haven't seen him like this for so long. He is talking, signing and following simple commands. He has been so active and has even pulled up to a stand a few times today. He has gained some more weight and he has maintained his temp with no problems. He has decided that he doesn't need his NG tube anymore and has pulled it out twice.
We are waiting for his Intensivist to come and see him so they can turn down his feeds and give him something to poop. We have been waiting for most of the day and he still hasn't come. The nurse said she called and he was supposed to be here after lunch. He was on the floor but he never saw Aaron. Now she says he will be here at 5pm. I guess they will turn his feeds dowm and maybe we will be discharged tomorrow. I was hoping it would be today.
Feeling better tonight
Wednesday October 24, 2012
Aaron is about 80%!! He has been eating applesauce. He has even started drinking some chocolate Pediasure. We have been playing and he has been up moving around in his crib. It is great to see him feeling better. I love this little boy so much!! I cant believe the change in him in just a few short hours. He has even started to make his adorable sounds. I have missed his smiling face!!
Aaron is about 80%!! He has been eating applesauce. He has even started drinking some chocolate Pediasure. We have been playing and he has been up moving around in his crib. It is great to see him feeling better. I love this little boy so much!! I cant believe the change in him in just a few short hours. He has even started to make his adorable sounds. I have missed his smiling face!!
Answered prayers
Wednesday October 24, 2012
Aaron has moved to the Peds floor!!!
He is doing so much better that his Intensivist said he could be monitored on Peds. No more wires except for his NG tube and IV!! I am able to hold him and he has even been sitting up playing. It is so good to see him smiling and he has even signed to eat and drink!!
Aaron has moved to the Peds floor!!!
He is doing so much better that his Intensivist said he could be monitored on Peds. No more wires except for his NG tube and IV!! I am able to hold him and he has even been sitting up playing. It is so good to see him smiling and he has even signed to eat and drink!!
Day 3
Wednesday October 24, 2012
Aaron has started to improve. His temp has been great and he is off the warmer blanket. His heart rate and respirations are in the normal range and he is starting to wake up for longer periods of time. He gained 1.5 pounds !! I have been able to hold him for a few minutes at a time and he has even smiled today. He is still having seizures so his neuro has decreased another 5mg of his Onfi today. He will stay on this dose for a week then he will be done. Everyone is thinking that this was all because of the Onfi!! (It is what we were all hoping for). Hopefully the Keppra will control his seizures and he will be back to his silly happy self soon.
Aaron has started to improve. His temp has been great and he is off the warmer blanket. His heart rate and respirations are in the normal range and he is starting to wake up for longer periods of time. He gained 1.5 pounds !! I have been able to hold him for a few minutes at a time and he has even smiled today. He is still having seizures so his neuro has decreased another 5mg of his Onfi today. He will stay on this dose for a week then he will be done. Everyone is thinking that this was all because of the Onfi!! (It is what we were all hoping for). Hopefully the Keppra will control his seizures and he will be back to his silly happy self soon.
PICU day 2
Tuesday October 23, 2012
Aaron has tolerated his feeds so far. They have increased them to 40cc/hr, but he still lost over a pound. He is still sleeping, only waking for a few seconds at a time. His heart rate is better but his temp is still fluctuating. He is continuing to have seizures but his respirations have finally become normal.The nurses up here have been wonderful. They have fallen in love with Aaron and his adorable curls. He is such a sweet little angel that it is so easy to do. I got to hold him for a few minutes while his bed was changed and it was pure heaven. I didn't want to put him down. I feel so lucky to have such an amzing team of drs taking care of Aaron, and I know they are doing all they can for my little boy.
Aaron has tolerated his feeds so far. They have increased them to 40cc/hr, but he still lost over a pound. He is still sleeping, only waking for a few seconds at a time. His heart rate is better but his temp is still fluctuating. He is continuing to have seizures but his respirations have finally become normal.The nurses up here have been wonderful. They have fallen in love with Aaron and his adorable curls. He is such a sweet little angel that it is so easy to do. I got to hold him for a few minutes while his bed was changed and it was pure heaven. I didn't want to put him down. I feel so lucky to have such an amzing team of drs taking care of Aaron, and I know they are doing all they can for my little boy.
Seizures
Monday October 22, 2012
Aaron has had more seizures over the last few hours. He has been seen by his Endo, Intensivist and his Neuro. His Neuro has decided to take him off of the Onfi quicker. He has decreased another 5mg daily. He is keeping his Keppra schedule the same. This sweet little boy has been through so much and it is so hard to see him so sick. I just want to hold and rock him. His temp has started to come up a little but he still needs to be on the warmer blanket for now.
Aaron has had more seizures over the last few hours. He has been seen by his Endo, Intensivist and his Neuro. His Neuro has decided to take him off of the Onfi quicker. He has decreased another 5mg daily. He is keeping his Keppra schedule the same. This sweet little boy has been through so much and it is so hard to see him so sick. I just want to hold and rock him. His temp has started to come up a little but he still needs to be on the warmer blanket for now.
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