Aaron has not been eating and drinking for about a month. Over the last few days he has not eaten and has only taken in about 18-23 ounces of fluids. This is not typical at all. Aaron always wants to drink and he loves to eat yogurt and bananas. He has been losing a lot of weight. At his endo appointment September 13th he weighed 43 pounds. He went to the Dr because he was not feeling well and he was down to 40 pounds 10 ounces on September 24th. He went back to the Dr on Saturday October 10th and he was 40 pounds 11 ounces. He went back to the Dr on October 13th and he was down to 40 pounds. At his next appointment on Thursday October 18th he weighed 37 pounds 8 ounces. Today he was weighed at Dr C's office and he was down to 37 pounds 2 ounces.
While in the PICU today they decided to place a NG tube for his nutrition and meds. He was sleeping and at first didn't seem to respond but after a few seconds he really gave them a workout. He never cried he just tried to push them away and when that didn't work he used his feet. They couldn't believe how flexible he was. Once they were done he was fine and went right back to sleep. He has been tolerating his feeds with no problems and they have been able to increase them all evening. Hoping he starts feeling better soon. I miss his smile!!
No comments:
Post a Comment