Aaron went to Dr C this morning. He lost 3 ounces, but Dr C said it was OK so he didn't feel he needed to do anything right away. He wants to see him again next week. His heart rate was up to 80!!! I am so thankful that we were able to come home. He said he had been thinking about Aaron and thinks he should see a Gastroenterologist. He wants to make sure there isn't anything wrong that we are missing and that Dr M (GI Dr) can make the final decision on the feeding tube. He does think that the feeding tube is going to be the best thing for Aaron. I am worried about him pulling it out but I will do whatever is best for Aaron. Knowing that he has a high risk for sudden death and that there isn't really anything they can do for Aaron when his heart rate goes down make me so thankful for his good days. Today has been a good day. He has been full of smiles and giggles. I love this little boy and will do whatever I need to do to keep him healthy. I am just taking it day by day and treasuring every moment with this special little boy.
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