Aaron had a lot of Dr appointments today. He saw the surgeon Dr S and he though this site looked really good. In 3 weeks he will finally get rid of the peg tube and get his button. I also found out that his biopsy came back positive for chronic reflux. He should have gotten the Nissen. Now we are trying another med to help and he will be scoped when he gets his button. If it is not any better he will need another surgery. Poor baby. It has taken him a very long time to bounce back form this surgery. After our appointment he had some labs drawn. He was so good and they had such a hard time getting any blood. After his labs he had a Neuro appointment. He is doing well with his seizures so now they want to start decreasing his Depakote. This med has a lot of side effects and causes liver damage. Aaron does not need any other issues. Finally we were on our way home. I feel good about his seizure control but am very nervous about weaning him off the Depakote. I am trusting and believing that this is what is right for Aaron. We were only home for a few minutes when I get a call form Dr T (Endo) the blood tests for Dr Y came back and his glucose is only 41. We talk about his rate of feed and his meds and his readings over the past few days. We are not sure why it was so low. The continuous feed was supposed to take care of that. We will keep a log and head back to the Dr to decide what we are going to do about his glucose levels. I am praying the new meds work so he does not have to go through another surgery.
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