Friday September 20, 2013
All of the boys are starting to feel better. Aaron has been in a great mood. I am thinking that he isn't going to get what the other boys have/had. WRONG!!
Around 5pm Aaron gets quiet. I think that he is just getting tired. Around 5:30 I hear "the sound" and I know he is having a seizure. I sit with him and talk to him and tell him its going to be OK Afterwards I scoop him up and just hold him. He starts to come around and I start to feed Taevon and he has another seizure. As I am looking at him I know we need to go to the hospital. He doesn't look right and I just have a feeling. I get him ready and all of the things he needs and we leave. We get to the ER and they instantly know that he is still seizing. They have such a hard time getting blood and an IV started. He is poked numerous times before they are successful. He gets 2 doses of Ativan and they are talking about Phenobarbital. The second dose of Ativan (a full 1mg) finally calms him down. They do a chest X-ray and they want to do another one in the morning because there is something in the lower right lung. His sats are low and he is placed on oxygen. He is admitted to the PICU.
Once settled in his room Dr CH orders a Urinalysis and an anchored cath. The nurses had a very hard time getting in the catheter and after both trying they call for some help. A nurse from the ER comes up and she is finally able to get one in place. His sats are in the low 90's so he placed on 1 liter of O2. He sleeps for the rest of the night.
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