Tuesday January 14, 2014
Aaron had a neuro appointment today. We decided not to change his meds since he is doing so well. He is still having seizures but we have not been to the hospital since September. At the end of the appointment Dr O sat down and turned to me and said "I am retiring May 1 st" I almost burst into tears. No!!!! Aaron is such a complex little boy. Dr O has been with us since the onset of his seizures. He knows Aaron. Then he said that they were interviewing some new neuros and we would make a decision at Aaron's next appointment in April. So much to think about. Do we stay with the new neuro or do we change and go with Dr k. Dr K is the dr that put Aaron on the Sabril and Vimpat. These are the meds that are helping him the most. I like Dr K but she was very big on getting Aaron VNS Therapy. (vagus nerve stimulator). I have mixed feelings about this. Lots to think and pray about.
I went and got the mail today, which is weird because I never get the mail. I got a letter from Aaron's endocrinologist, Dr T. She was letting me know that she is retiring at the end of April. WHAT!?! You have got to be kidding me. Another Dr leaving. I LOVE Dr T. She knows Aaron. Every time he has been in the hospital she always comes to see him. She has been Aaron's dr since we first brought him home. I have met our new endo, Dr R. she is very nice but not Dr T. I guess it will take some time to get used to her and to totally trust her with Aaron. There are lots of changes in the future. Aaron is doing well and I pray that he continues to be healthy.
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