Aaron has had lots of appointments the last few days. His first ons was with Dr C. His heart rate has gone up which is great news. We did however talk about his choking and reflux. Dr C thinks it would be a good idea to get a nissen. We are going to see how the next month goes and then go fro there. His second appointment was with the Endo, Dr R. He had some lab work done and it showed an elevated sodium level, higher than normal for Aaron. Dr R adjusted his DDAVP and he will have some follow up labs in the next few weeks. His last appointment was with Dr K his neuro. We talked about his seizures and sleeping habits. I explained that he never slleps for very long at a tie. Thst his sleep is very restless. She thinks he has sleep apnea and has ordered a sleep study. She thinks this is why he cannot tolerate the medication Onfi. When he is on this med (which is the best for Lennox) his heart rate drops very low, he is very lethargic and very hard to arouse during the day. Dr K stated that Onfi cam make sleep apnea worse. So if he does have it we will ween him off the low dose that his body tolerates. We are hoping that if he sleeps better we will see less seizures. Dr k said sleep and seizures are closely correlated. I hope we are able to find someting that helps him sleep better at night.
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