Tae went to his neuro appointment today. It seems that every time we go to the Dr we come out with more referrals for other things, This is the case for us today. This was just a routine follow up that should have been a short visit. But since my kiddos dont do things the easy was we were ther for much longer. We talked about the increaase in Tae's coughing, his drooling, the new thing of him crossing his eyes and his spasticity. He is going to get Botox to help with the spasticity in March. He will have Mri to rule out hydrocephaly, and another EEG to determine what is seizure activity and what is just Tae being Tae. (so hard to figure things out since he nonverbal) He was started on a new med to help control the drooling. If this doesnt work, since he is at a higher risk of aspiration he will have surgery to remove his mandibular salivary glands. I am hoping to get this all scheduled this month since he has surgery at Riley next month. I love this little boy!!
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