Tae had PT this morning. He is so tight and stiff I think he is constipated again. Poor kid. Even though he is stiff and not feeling his best he smiles. His smile melts my heart! I LOVE this little boy so much. He did so well in his gait trainer during therapy. After therapy I put him in his stander and he smiled the entire time. He has come so far in the last 2 years. I can't imagine the family without him. He is the sweetest little boy!
We are going to try Botox to help with his increased tone. I am praying that it makes a huge difference. His left arm is so tight and it is so hard to get his new brace on in the morning. I am looking forward to warmer weather so we can get outside. Taevon loves going for walks and swinging in the backyard. He is having surgery next Friday at Riley. I hate to put him through that but Dr C (urologist) says it needs to be done. Even though it is outpatient it is still very scary. The anesthesia loweres his seizure threshold and he just a had a very big one not that long ago. Hopefully after this surgery he will be done with any extra medical procedures. His routine appointments and therapy keep us busy enough!
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