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Monday March 9, 2015

Dr O (hematologist) called this morning. He said that Aaron's PTT was still very delayed. He definitely has a clotting factor deficiency. It did almost correct itself with the mixing studies but not quite so he feels that there is a inhibitor going on too. Aaron will have more blood work and they will check for factors 8,9 11 and 12. Dr O also believes that a recent antibiotic for a sinus infection blocked the absorption of vitamin K.. I forgot to ask when I am supposed to give his this supplement if it is only when he is on a antibiotic or when I give his a stress dose of his Hydrocortisone. I also need to find out exactly how much he needs to take. For right now he is doing fairly well. He hasn't had a bloody nose in a few days and most of his bruises are gone. He is really constipated but we see Dr M (GI) tomorrow morning.

 This is a slow week with only 2 appointments and therapy. Nicholas is finally feeling better and went to school this morning. Taevon is back to his normal happy self. Thank goodness he didn't end up getting what Nicholas had. He had a big seizure and it took him awhile to bounce back this time. Keagan is still having headaches even on this new med. I need to make his appointment with the ENT to see about his tonsils and adenoids. I was sick with the flu this weekend and still not feeling the best today so it will have to wait until tomorrow.