Sunday January 6, 2013 - Monday January 7, 2013
Aaron has been doing great. He is more active and almost like his old self and I haven't noticed any seizures for about a week. He has a feeding at 11pm and something was not right. He was really out of it and unable to hold onto his bottle. As I looked at him I realized he was having a seizure. He would relax and then his arms and legs would shoot out and he would make a funny sound. I picked him up because normally they only last a few seconds. This went on for over a minute. He finally calmed down but was out of it for the longest time. I stressed dosed him and when he finally started to come out of it he drank some Pediasure. He was up and down for the rest of the night and still not himself.
This morning he woke up and was in a good mood. He ate some yogurt (about 2 bites) and I gave him his meds. As soon as he took his Keppra he had another seizure but this one only lasted a few seconds and he bounced back a little quicker. He was very sleepy for the rest of the day and took a long morning nap. He had another seizure right before lunch this one was a litttle longer but not as long as the one last night. He slept for the rest of the afternoon. Since he got up from his nap he has been better but still not himself. I talked with Dr O (neuro) and he is scheduled for a 23 hour EEG on January 21st. I am hoping they can find the right med combination to get these seizures under control. I hate not being able to make it all better for him.
Monday, January 7, 2013
lost tooth
Sunday January 6, 2013
Nicholas went to another birthday party today at Ultrazone. He had the best time and wants to go back to play again. He loved running around with all of his friends. He got home late and had a hard time falling alseep. He got up around 9pm because he pulled his tooth out and lost it somewhere in his bed. He looked so cute with his tooth out minus all the blood all over his face :) Once a tooth becomes loose he cant leave it alone!
Nicholas went to another birthday party today at Ultrazone. He had the best time and wants to go back to play again. He loved running around with all of his friends. He got home late and had a hard time falling alseep. He got up around 9pm because he pulled his tooth out and lost it somewhere in his bed. He looked so cute with his tooth out minus all the blood all over his face :) Once a tooth becomes loose he cant leave it alone!
thankful for moments like these
Aaron
January 5, 2013
Aaron has changed so much these last few days. He has been in such a good mood and so full of smiles and giggles. He is almost back to his silly happy self. He is still not eating but has been drinking more each time. I love seeing him crawling around and playing with toys. He has found some new toys that he likes to play with now. It is so cute to see him pushing them all around the house. His favorite is still his ball but now he has been playing with his turtle, a Sesame street toy, and his big orange therapy ball. He has started "talking " again and I LOVE it!! I have missed my sweet baby with so much personality and I am so thankful that he is back! We still need to get his seizures under control and he has a 23 hour EEG scheduled this month. We also need to get his upper endoscopy done so he can get his feeding tube so he can start getting the calories that his body so desperately needs. He is so thin and his clothes are so big on him now. I love to see him feeling so much better.
Aaron has changed so much these last few days. He has been in such a good mood and so full of smiles and giggles. He is almost back to his silly happy self. He is still not eating but has been drinking more each time. I love seeing him crawling around and playing with toys. He has found some new toys that he likes to play with now. It is so cute to see him pushing them all around the house. His favorite is still his ball but now he has been playing with his turtle, a Sesame street toy, and his big orange therapy ball. He has started "talking " again and I LOVE it!! I have missed my sweet baby with so much personality and I am so thankful that he is back! We still need to get his seizures under control and he has a 23 hour EEG scheduled this month. We also need to get his upper endoscopy done so he can get his feeding tube so he can start getting the calories that his body so desperately needs. He is so thin and his clothes are so big on him now. I love to see him feeling so much better.
dinosaurs
Saturday January 5, 2012
The boys went to Discover the Dinosaurs at the Coliseum today. They had the best tiem. at first Keagan was scared because he thought they were real. After a few minutes he calmed down and had a blast. They rode the stegasaurus and did the obstacle course. Their favorite part was the huge slide.
The boys went to Discover the Dinosaurs at the Coliseum today. They had the best tiem. at first Keagan was scared because he thought they were real. After a few minutes he calmed down and had a blast. They rode the stegasaurus and did the obstacle course. Their favorite part was the huge slide.
Wednesday, January 2, 2013
end of vacation
January 2, 2013
Today was the boys last day of vacation. I am not ready for them to go back to school. Nick is still not feeling very well so I am not sure if he will go back tomorrow. Keagan is very excited to go back to school and see all of his friends. I am sure as soon as Taevon sees the bus he will start smiling and bouncing around in his wheelchair. He loves getting on the bus. Aaron and I are going to hang around at home and get his 23 hour EEG scheduled and work in his gait trainer. He is so funny and has become so vocal. As soon as HE is done doing something he yells "DA" (which means done) and refuses to do anything else. He is so stubborn :) All of the boys are finally sleeping, bookbags are packed, clothes ironed and lunches started. I really am not ready for our routine to start. I have loved our lazy mornings.
so hard to get everyone smiling and looking at the camera at the same time
Aaron announced that he was done !!
Aaron crawling away and refusing to turn around for the camera. He is so funny.
Today was the boys last day of vacation. I am not ready for them to go back to school. Nick is still not feeling very well so I am not sure if he will go back tomorrow. Keagan is very excited to go back to school and see all of his friends. I am sure as soon as Taevon sees the bus he will start smiling and bouncing around in his wheelchair. He loves getting on the bus. Aaron and I are going to hang around at home and get his 23 hour EEG scheduled and work in his gait trainer. He is so funny and has become so vocal. As soon as HE is done doing something he yells "DA" (which means done) and refuses to do anything else. He is so stubborn :) All of the boys are finally sleeping, bookbags are packed, clothes ironed and lunches started. I really am not ready for our routine to start. I have loved our lazy mornings.
Tuesday, January 1, 2013
A New Year
January 1, 2013
Happy New Year!!
I am looking forward to all of the memories we will make this year. I am focusing on all of the things I am thankful for and treasuring every second I spend with my boys this year. We are planning a Disney vacation at the end of the year and are hoping to get all of Aaron's medical issues under control. He has some important appointments coming up in the next few weeks and I am praying they come up with some quick decisions. We are also looking forward to T's adoption being finalized in the next few months!! We are so happy that he is finally home.
Today we spent the day at home. Nick and Keag aren't really feeling so well and Nick stayed in bed for most of the day. Aaron was in a good mood and played with a new toy. Taevon was his usual happy sweet self until he was ready for bed.
Sweet pictures of my boys today. Poor Nick looks like he doesn't feel good. So thankful for these special little boys! I am looking forward o see all they they will accomplish this year.
Happy New Year!!
I am looking forward to all of the memories we will make this year. I am focusing on all of the things I am thankful for and treasuring every second I spend with my boys this year. We are planning a Disney vacation at the end of the year and are hoping to get all of Aaron's medical issues under control. He has some important appointments coming up in the next few weeks and I am praying they come up with some quick decisions. We are also looking forward to T's adoption being finalized in the next few months!! We are so happy that he is finally home.
Today we spent the day at home. Nick and Keag aren't really feeling so well and Nick stayed in bed for most of the day. Aaron was in a good mood and played with a new toy. Taevon was his usual happy sweet self until he was ready for bed.
Sweet pictures of my boys today. Poor Nick looks like he doesn't feel good. So thankful for these special little boys! I am looking forward o see all they they will accomplish this year.
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