seizures...again

Sunday January 6, 2013 - Monday January 7, 2013

Aaron has been doing great. He is more active and almost like his old self and I haven't noticed any seizures for about a week. He has a feeding at 11pm and something was not right. He was really out of it and unable to hold onto his bottle. As I looked at him I realized he was having a seizure. He would relax and then his arms and legs would shoot out and he would make a funny sound. I picked him up because normally they only last a few seconds. This went on for over a minute. He finally calmed down but was out of it for the longest time. I stressed dosed him and when he finally started to come out of it he drank some Pediasure. He was up and down for the rest of the night and still not himself.

This morning he woke up and was in a good mood. He ate some yogurt (about 2 bites) and I gave him his meds. As soon as he took his Keppra he had another seizure but this one only lasted a few seconds and he bounced back a little quicker. He was very sleepy for the rest of the day and took a long morning nap. He had another seizure right before lunch this one was a litttle longer but not as long as the one last night. He slept for the rest of the afternoon. Since he got up from his nap he has been better but still not himself. I talked with Dr O (neuro) and he is scheduled for a 23 hour EEG on January 21st. I am hoping they can find the right med combination to get these seizures under control. I hate not being able to make it all better for him.