exhausted

I am exhausted. Aaron has been having more seizures and they are lasting longer. I am up late and up all during the night with him.We were able to get a video of one and show it to Dr O (neuro). He still wants to do the Video EEG on the 21st and is hoping to see one on video so he can see what his brain is doing. He also wants some labs done and his Keppra level checked tomorrow. Some days are good and others he is so lethargic it is hard to get him to drink. He has a feeding at 11pm and then at 3am. It takes him about 45 minutes to drink 6-8 oz at 3am and sometimes even longer. So far today has been a good day and he has been up playing and crawling all over the house. He has the cutest smile and the sweetest giggle. I really enjoy our mornings together.