Aaron was admitted for his 23 hour video EEG this morning. He was in a good mood then as soon as they were done attaching all of the electrodes he fell asleep. He slept for most of the afternoon. I loved snuggling with my sweet boy today. Around 3:30 he began having seizures. Some were very small others lasted longer. He slept off and on the rest of the evening. He was up around 11pm and was in a great mood. He was so loud and was ready to party. He would yell and say "dadadadada" over and over. There was another little boy in a room close to us and he would imitate Aaron. Aaron would laugh and do it again. They did this for quite awhile. It was so cute. He finally fell asleep for the night around 11:45 and slept until 4am. At 4:04 am he began making a strange noise. When I looked at him I realized he was having a seizure. I held his hand and talked to him like I always do during his seizures. This one was different. He began having tremors and holding his breath for longer periods of time. After 5 minutes it was not slowing so down so I paged the nurse. They came in and had to give him oxygen and checked his vitals. It lasted for a while longer after the nurses came in and then it finally stopped. He was exhausted. I picked him up and he fell right to sleep and slept in my arms until 9:40am. Around 10am they came in unhooked him and we were able to go home. He slept the rest of the day. I am hoping that once Dr O reviews the video and EEG he will get his meds fixed so he can get his seizures under control.
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