Taevon's new dr

Taevon saw a new Dr today, Dr C, from Riley. It was foe his undescended testes. He was able to only find one and wondered if both dropped at one time. We don't have a lot of good medical records for Tae, so he wants his to have surgery. He stated that undescended testes that never dropped  have an increase in testicular coancer. He will be having surgery January 2, 2015. I was hoping he would say it was fine and we didn't need to do nything about it right now, or ever. I hate putting him through a surgery but it is for the best. It is outpatient so we will be home later that night. He also said that he wanted to do an ultrasound of his bladder due to contractures. I am hoping that it is nothing to worry about. Tae has been through enough in his short life. He is the sweetest little boy and his smile melts my heart.

lots of appointments

December 2014

Aaron has had lots of appointments the last few days. His first ons was with Dr C. His heart rate has gone up which is great news. We did however talk about his choking and reflux. Dr C thinks it would be a good idea to get a nissen. We are going to see how the next month goes and then go fro there. His second appointment was with the Endo, Dr R. He had some lab work done and it showed an elevated sodium level, higher than normal for Aaron. Dr R adjusted his DDAVP and he will have some follow up labs in the next few weeks.  His last appointment was with Dr K his neuro. We talked about his seizures and sleeping habits. I explained that he never slleps for very long at a tie. Thst his sleep is very restless. She thinks he has sleep apnea and has ordered a sleep study. She thinks this is why he cannot tolerate the medication Onfi. When he is on this med (which is the best for Lennox) his heart rate drops very low, he is very lethargic and very hard to arouse during the day. Dr K stated that Onfi cam make sleep apnea worse. So if he does have it we will ween him off the low dose that his body tolerates. We are hoping that if he sleeps better we will see less seizures. Dr k said sleep and seizures are closely correlated. I hope we are able to find someting that helps him sleep better at night.

bugs

November 2014


Nick has taken an interest in bugs!! yuck! He is forever picking them up outside and letting them crawl all over his hands. He especially LOVES grasshoppers.

Thanksgiving Feast

Thursday November 21, 2014

Keagan had his Thanksgiving Feast with his class. They looked so cute in their pilgrim outfits. Keagan had so much fun eating with his friends. He LOVED the pumpkin pie and the mashed potatoes. I can't believe he is in Kindergarten!! He LOVES school and his teacher. I am so glad that he is doing so much better than when he was in Pre K. What a difference a good teacher makes!!!

gingerbread house with grandma and grandpa

The boys made gingerbread houses for the gingerbread festival this year. They had so much fun with grandma and grandpa.

party time

Sunday November 16, 2014

Today we are celebrating Aaron's birthday! We are having a Jake and the Neverland Pirates party. He LOVES Jake!! Celebrating his birthday is so special. This sweet little boy has a lot of things going on and I never know how he is going to do day to day. I cherish EVERY moment I get to spend with this amazing little boy. He has taught me to take nothing for granted, to slow down and enjoy the small things. Aaron you are doing things the Drs said you would never be able to accompolish! I am so proud of you. You my sweet little angel amaze me every day. I love you so much and can't wait to see what God has planned for your life. You are such a blessing.

tis the season

Saturday November 15, 2014

I LOVE this time of year. And I LOVE spending time with my family. The boys got to see the lighting of the big Christmas Tree. It was so cold but they had such a great time. The boys loved all of the music and seeing the lights with thier 3D glasses.  I am so ready to start decorating the house this year. The boys wanted a "frozen" theme and zi think I finally have everything I need. Can't wait to start watching Christmas movies all snuggled up with the boys.