Sunday July 28, 2013
Aaron has been doing great, but I know everything can change in an instant. Aaron slept a little longer than usual this afternoon. He didn't wake up until around 4pm. I got him up and instantly knew something was not right. I checked his blood sugar and it was 74 so that wasn't the problem. I really couldn't say what I thought was wrong for sure I just knew something wasn't right. I called Dr C's office and talked with the phone nurse. I decided to take him to the ER. He was at the point where I knew we had a little bit of time before he started to crash so I didn't call the ambulance. Once in the car he began having back to back seizures and became VERY lethargic. They took him right back at the ER and began working on him. His heart rate was very high and he continued to have seizures. He was finally given Ativan and they eventually stopped. It took everything I had not to burst into tears. He was admitted to the PICU AGAIN. Once again we are living moment to moment
Tuesday, July 30, 2013
In the blink of an eye
Sunday July 28, 2013
We had to take Aaron to the ER. He was admitted to the PICU
We had to take Aaron to the ER. He was admitted to the PICU
food truck addiction
Saturday July 27, 2013
Keagan went to Food Stock 2013. He had the best time. Keagan LOVES to eat if I would let him he would eat/snack all day long. He ate so much that he only ate a banana for dinner. He had Affine fries, a Bravas Reggie Miller Dog with ketchup, 1/2 of a Jumby's Joint bacon cheddar cheeseburger, Wiseguy chocolate ice and 1/2 a bottle of Sprite. He brought the rest of his sprite home for tomorrow. He only gets sprite on special days so he never lets it go to waste!
Keagan went to Food Stock 2013. He had the best time. Keagan LOVES to eat if I would let him he would eat/snack all day long. He ate so much that he only ate a banana for dinner. He had Affine fries, a Bravas Reggie Miller Dog with ketchup, 1/2 of a Jumby's Joint bacon cheddar cheeseburger, Wiseguy chocolate ice and 1/2 a bottle of Sprite. He brought the rest of his sprite home for tomorrow. He only gets sprite on special days so he never lets it go to waste!
Sunday, July 28, 2013
"I get a surprise"
Friday July 26, 2013
Keagan last his second tooth. We were getting ready to eat lunch and he yells "yea!! I get a surprise". Mommy I have something to tell you. I put my tooth under my pillow because when I put my Scooby Doo toy in my mouth and pushed real hard and my tooth fell out. Are you mad?" Keagan has a habit of putting everything in his mouth. The other day he was putting a cup on his mouth and inhaling so it would stay and he ended up with bruises around his mouth. Once we talked about not putting toys in his mouth AGAIN he was very excited. We do toys instead of money because of Nicholas. Nicholas has usually digs his teeth out and always catches us around 10pm with no cash. Since I always have a stock of "surprises" that's what they get under their pillows and they can hardly wait until morning. When I put Keag to bed he showed me where to put his surprise so he would see it when he opened his eyes! Too cute!!
so excited
Keag after sucking cup around his mouth!
I can't believe how fast my boys are growing up. Time is going way too fast for me!
Keagan last his second tooth. We were getting ready to eat lunch and he yells "yea!! I get a surprise". Mommy I have something to tell you. I put my tooth under my pillow because when I put my Scooby Doo toy in my mouth and pushed real hard and my tooth fell out. Are you mad?" Keagan has a habit of putting everything in his mouth. The other day he was putting a cup on his mouth and inhaling so it would stay and he ended up with bruises around his mouth. Once we talked about not putting toys in his mouth AGAIN he was very excited. We do toys instead of money because of Nicholas. Nicholas has usually digs his teeth out and always catches us around 10pm with no cash. Since I always have a stock of "surprises" that's what they get under their pillows and they can hardly wait until morning. When I put Keag to bed he showed me where to put his surprise so he would see it when he opened his eyes! Too cute!!
so excited
I can't believe how fast my boys are growing up. Time is going way too fast for me!
Friday, July 26, 2013
Aaron's appointment
Friday July 26, 2013
Aaron saw Dr C today. I was really looking forward to this appointment because I am so surprised about how much he has changed in the last week. He has gained 2 more pounds so he decreased his feeds to 60ml/hr and increased his free water to 75ml tid. We talked about him sleeping so much since he is usually only awake for about 5 hours a day. Dr C said its what he is needing right now so its ok unless the amount of sleep needed starts to increase. He was also glad that when he is awake he is alert. He was very pleased with how he is doing but reminded me of Aaron's cycles. I know this I just push it to the back of my mind. I can't let myself focus on the negative and dwell on the what ifs and whens. I am enjoying every second with this precious little angel. I never take one second for granted with any of my boys. I know how quickly things can change.
crawling with his backpack with feeding pump!
Aaron saw Dr C today. I was really looking forward to this appointment because I am so surprised about how much he has changed in the last week. He has gained 2 more pounds so he decreased his feeds to 60ml/hr and increased his free water to 75ml tid. We talked about him sleeping so much since he is usually only awake for about 5 hours a day. Dr C said its what he is needing right now so its ok unless the amount of sleep needed starts to increase. He was also glad that when he is awake he is alert. He was very pleased with how he is doing but reminded me of Aaron's cycles. I know this I just push it to the back of my mind. I can't let myself focus on the negative and dwell on the what ifs and whens. I am enjoying every second with this precious little angel. I never take one second for granted with any of my boys. I know how quickly things can change.
baking soda and vinegar
Friday July 26, 2013
The boys love science, especially Nicholas. We did some experiments with baking soda and vinegar. First we blew up some Ziploc bags. They had so much fun doing this one this one that we did it until we were out of bags.
Next we used the vinegar and baking soda to blow up balloons. We did this until we were out of vinegar. They had so much fun I'm going to go get more bags and vinegar tonight.
The boys love science, especially Nicholas. We did some experiments with baking soda and vinegar. First we blew up some Ziploc bags. They had so much fun doing this one this one that we did it until we were out of bags.
Next we used the vinegar and baking soda to blow up balloons. We did this until we were out of vinegar. They had so much fun I'm going to go get more bags and vinegar tonight.
Allergist
Thursday July 25, 2013
Nicholas went to the allergist today. He needs to have another skin test for his peanut/tree nut allergies. His first skin test was positive at a +3 while his blood test level was very low. The dr said the skin test is more sensitive. He will have that and if it is negative he will have the oral challenge. He is not looking forward to any of the tests. He was so cute at his appointment. I really didn't need to talk because he voiced all his concerns and wanted to know what was next. He was very curios as to why one test was positive and one was negative. He told them he was not too happy about the blood test because "the needle was in his arm for like 12 minutes" He also told them that he would rather eat a peanut product instead of plain peanuts. He makes me laugh. I am hoping that he doesn't make a huge deal out of the skin test again. He can be quite dramatic!
Nicholas went to the allergist today. He needs to have another skin test for his peanut/tree nut allergies. His first skin test was positive at a +3 while his blood test level was very low. The dr said the skin test is more sensitive. He will have that and if it is negative he will have the oral challenge. He is not looking forward to any of the tests. He was so cute at his appointment. I really didn't need to talk because he voiced all his concerns and wanted to know what was next. He was very curios as to why one test was positive and one was negative. He told them he was not too happy about the blood test because "the needle was in his arm for like 12 minutes" He also told them that he would rather eat a peanut product instead of plain peanuts. He makes me laugh. I am hoping that he doesn't make a huge deal out of the skin test again. He can be quite dramatic!
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