Sunday July 28, 2013
Aaron has been doing great, but I know everything can change in an instant. Aaron slept a little longer than usual this afternoon. He didn't wake up until around 4pm. I got him up and instantly knew something was not right. I checked his blood sugar and it was 74 so that wasn't the problem. I really couldn't say what I thought was wrong for sure I just knew something wasn't right. I called Dr C's office and talked with the phone nurse. I decided to take him to the ER. He was at the point where I knew we had a little bit of time before he started to crash so I didn't call the ambulance. Once in the car he began having back to back seizures and became VERY lethargic. They took him right back at the ER and began working on him. His heart rate was very high and he continued to have seizures. He was finally given Ativan and they eventually stopped. It took everything I had not to burst into tears. He was admitted to the PICU AGAIN. Once again we are living moment to moment
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