I love this little boy!
Thursday, August 29, 2013
watermelon
Keagan LOVES watermelon. The bigger the piece the better. He was so excited to get one at the apple orchard. He has been eating it everyday and keeps asking how much he has left. Too cute!
new wheels
Thursday August 29, 2013
Taevon go this new wheelchair today!! He loves it. He was so excited when I put him in it and he just kept smiling. It is much more comfortable than the one he had and it fits him so much better. He is such a sweet little boy. I never knew how much a smile could melt my heart until my boys.
Taevon go this new wheelchair today!! He loves it. He was so excited when I put him in it and he just kept smiling. It is much more comfortable than the one he had and it fits him so much better. He is such a sweet little boy. I never knew how much a smile could melt my heart until my boys.
cross country
Nicholas is running cross country for his school this year. He is so excited for his first race and is having so much fun. He said "my coach said to find my pace. Mom, I never could find it" He is so cute. I can't wait to see him in his first race next month.
I am going to park closer next week so I can get some better pictures. I am so proud of Nick.
I am going to park closer next week so I can get some better pictures. I am so proud of Nick.
new bed
Tuesday August 27, 2013
Aaron got a new bed. It is going to be so good for him. It is padded so I don't have to worry about him hurting himself during a seizure. It also allows me to elevate the head to decrease the risk of aspiration. I am looking into buying some sheets that are made of lycra to give him more sensory input in hopes that he will leave his feeding tube in during the night. It would be wonderful if he would start sleeping for longer periods of time. Right now he is getting up about every 1.5 to 2 hours and is up for at least an hour each time. He usually pulls his tube out a few times a night which makes for multiple pajama and bedding changes. I am exhausted.
Aaron got a new bed. It is going to be so good for him. It is padded so I don't have to worry about him hurting himself during a seizure. It also allows me to elevate the head to decrease the risk of aspiration. I am looking into buying some sheets that are made of lycra to give him more sensory input in hopes that he will leave his feeding tube in during the night. It would be wonderful if he would start sleeping for longer periods of time. Right now he is getting up about every 1.5 to 2 hours and is up for at least an hour each time. He usually pulls his tube out a few times a night which makes for multiple pajama and bedding changes. I am exhausted.
big boy
Tuesday august 27, 2013
Aaron saw Dr C this morning. He is still gaining lots of weight. Dr C said Aaron goes through periods where he gains weight uncontrollably and then loses weight just as fast. He is taking it slow decreasing his calories. He said everything else looked good. He was glad to see Aaron so alert. He will see him again in a few weeks.
Aaron saw Dr C this morning. He is still gaining lots of weight. Dr C said Aaron goes through periods where he gains weight uncontrollably and then loses weight just as fast. He is taking it slow decreasing his calories. He said everything else looked good. He was glad to see Aaron so alert. He will see him again in a few weeks.
preschool
Monday August 26, 2013
Keagan got to meet his teacher and see his classroom tonight. He was so excited that his bag is blue. He is looking forward to decorating it this weekend. He knows his teacher and is very excited to start school this year. I am looking forward to seeing all that he will learn this year.
Keagan got to meet his teacher and see his classroom tonight. He was so excited that his bag is blue. He is looking forward to decorating it this weekend. He knows his teacher and is very excited to start school this year. I am looking forward to seeing all that he will learn this year.
Wednesday, August 21, 2013
Aqua therapy
Wednesday August 21, 2013
Taevon had Aqua Therapy today. He loves the water. He smiled a lot and was even kicking. He loved having therapy with a friend this week.
Taevon had Aqua Therapy today. He loves the water. He smiled a lot and was even kicking. He loved having therapy with a friend this week.
not a fan of the swim collar
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