Tuesday August 27, 2013
Aaron got a new bed. It is going to be so good for him. It is padded so I don't have to worry about him hurting himself during a seizure. It also allows me to elevate the head to decrease the risk of aspiration. I am looking into buying some sheets that are made of lycra to give him more sensory input in hopes that he will leave his feeding tube in during the night. It would be wonderful if he would start sleeping for longer periods of time. Right now he is getting up about every 1.5 to 2 hours and is up for at least an hour each time. He usually pulls his tube out a few times a night which makes for multiple pajama and bedding changes. I am exhausted.
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