seizures

Wednesday October 2, 2013

Taevon had a huge seizure this morning. It lasted a little over 4.5 minutes. I had just got everyone into the car to take Nick to the bus stop and then Keagan to school. I finished buckling in Aaron when Taevon hit him in the head. I told Taevon "NO" and then he moaned. When I looked up I saw he was having a seizure. He was so stiff and looking up and to the left. Then his lips started to turn blue. I yelled and made Nick and Keagan go back into the house. I thought I was going to have to call an ambulance. Then he gasped for air and his lips turned pink. He did this a few more times before his breathing returned to normal. He bounced back after about an hour. He was very sleepy and sat in my lap all day. Luckily my mom was able to come and get Nick and Keag to school.  Not again, and not Taevon too. I am emotionally exhausted. I called Neuro and Dr O increased his Keppra and wants to schedule a EEG. Hopefully we can find the right med combination for Taevon.

6 years old

October 2, 2013

                                                   HAPPY BIRTHDAY!!!!!

Today my little Keagan turned 6! I can't believe how much he has changed. He went form a timid little boy to a wild and rambunctious sweetheart. He is so sweet and outgoing and loves to help. I LOVE this little angel and am so lucky to be his mom. He has come so far in the last few years and has taught me so much. He is full of energy and keeps me on the move but I can't even remember life before him. He was so excited to get up and see all of his decorations that he got up at 5am!! He was super excited to open 2 small presents this morning.

                                                        HAPPY BIRTHDAY KEAGAN!!!!!!

lego

Sunday September 29, 2013

Nicholas LOVES lego. He got to go to Brickworld today. He had so much fun seeing all of the lego. he made some pyramids and bought some small lego figures for himself and Keagan. He spent the rest of the afternoon playing with all of his Star Wars lego sets.

all I want for Christmas...

Saturday September 28, 2013

Taevon lost his 2 front teeth. He looks so cute when he smiles. They have been loose for awhile but because of his meds his gums grow over his teeth. They finally fell out at the same time

.

Ultrazone

Saturday September 28, 2013

Nicholas celebrated his birthday with his friends at Ultrazone. They had so much fun. They got to play 2 games of laser tag, video games and ate pizza and cake. At the last minute they ended up playing another game. It was fun to watch him interact with all of his friends and to listen to their conversations. They are so funny.

Party

Sunday September 15, 2013

Today Nick finally had his family birthday party. We had to cancel it from last week because Nick was sick. We thought we were going to have to change it again because Aaron was in the hospital. Thankfully he was discharged Sat night. Taevon was very quiet due to his med increase and Aaron slept through the party.

Nick had the best time playing with his cousins. They ran around and played hide n seek. He and his cousin worked on his lego that he got from everyone. They enjoyed wearing the Super Hero masks. I LOVE having a house full of giggling kids!!!

 

PICU room 2

September 21, 2013

Aaron had a great nurse last night. This trip was a much better experience. All of the nurses and PA's were amazing. Our nurse in the ER was great and so nice to Aaron. It is easy to tell the ones that LOVE their job.

All of his labs came back normal, even his sodium level. 

Aaron decided that he didn't need his oxygen any longer and pulled out his cannula. I put it back in he said "nonononoooo" and pulled it out again. This time he threw it above his head. He was able to keep his sats up around 95 and never needed any the rest of the day. Dr Ch looked at his chest X-ray and said it was fine. Said it was just some stuff left over from April. He said he sounded clear and that the Rocephin would take care of whatever he had. Dr B (on call neuro) increased his Vimpat and ordered Diastat and the Ketogenic Diet. Unfortunately he is unable to do this diet due to his hypoglycemia. He remained stable and didn't have anymore seizures. He tolerated his feeds and was able to come home. This has been his shortest hospital say EVER. I am so thankful to his team of amazing Drs.