bike riding

Sunday March 30, 2014

Keagan has had a few good days. No headaches and has been up wanting to play. It is so nice to see him smiling again. Today he could not eat breakfast fast enough and get outside to ride his new bike. He got on his bike and after a push took off. It took him a few times to figure out the steering but after that he was gone. He was riding with one hand after a few minutes and even tried "hey mom look no holding on" before he fell off. He got right back up and tried no hands again. Keagan is my little dare devil. Nothing scares this child. Listening to his giggles sand seeing his smile was precious. LOVE this boy!

new bike

Saturday March 29, 2014

Keagan got a new bike. He is ready to go bike riding this weekend. He LOVES his new helmet!!

spring break is here

Friday March 28, 2014

Finally...Spring Break!!

Nicholas and Keagan were so excited to get a start on their break that they set their alarm and were up at 1:30am!!!! They were not to happy when ai put them back to bed until 6am. They were ready to play. Today was our LEGO day. They each got a new set of LEGO. They spent all day sitting at their LEGO table creating. It is fun to watch their imaginations at work.

outside

Friday March 22, 2014

Keagan had a fairly good day today. No leg pain but he did complain that his arm was very tired, too tired to eat eat breakfast. He was up playing for awhile before his head started to hurt.  He had to go to bed for about 2 hours because of a headache but felt better later on. We went outside to play with some sidewalk chalk. He even went to see the Muppet Movie last night. I am hoping that he is starting to feel better after all of the antibiotics.

Kindergarten

Tuesday March 18, 2014

Tonight was Kindergarten Round Up for Keagan. I can't believe how fast time is going. It was a little sad tonight, he is my last one to go to kindergarten. My boys are growing up and I am not ready. Time is going too fast for me. Keagan is looking forward to going to school with Nicholas and riding the bus.

LOVE this boy!

Keagan is still not feeling well. Poor baby still has a headache and no energy. He just stays in bed all day. He has 2 more days left of his antibiotic. I am thinking if it was a sinus infection he should be feeling much better by now. He is also looking a little pale and still not really wanting to eat. He will probably see Dr C later this week if he is still not feeling well.

St Patty's Day

Monday March 17, 2014

I couldn't wait for my little leprechauns to get up this morning. They were so excited to see their surprises.

Nicholas got a 3 pack of Skylander Swap Force, mini Lego Movie character and a pack of Gogos.

Keagan opened Octonaut figures, mini Lego Movie character, and a pack of Gogos.

Taevon opened blocks that rattle. He loves anything that rattles!

Aaron opened a lion ball. He has begun to explore new toys! Its great to see him play with new things!!

I love any little holiday where I can surprise the boys with fun things. I am looking forward to spring break and have a whole list of fun things planned. Every time I get to do these fun things I thank God for making all my dreams come true! I am so lucky to be Nick, Taevon, Keagan and Aaron's mom!!

learning new things

Sunday March 16, 2014

Aaron is such a special little boy. He has been through a lot in his short life. He has taught me so many things. When he was diagnosed with Lennox Gastuast Syndrome I feared the worst. I researched and read everything I could find on this debilitating disease. I let fear take over. I lost sight of all that he had accomplished despite what the Drs told me. I envisioned all that he had gained lost forever. I mourned the little boy he was and prepared myself for what was to come. I am still waiting....

Aaron has once again proved everyone wrong. We are seeing NO effects of this awful disease. He has not lost his communication, in fact he is gaining in this area. He is using his words more and even learning new sounds. Since his diagnosis 19 months ago he has learned to say "mama" and has his own words for many things. He shakes his head yes or no and will say "Ya" for yes. He is so opinionated.

He did lose some gross motor skills but he is now crawling again and working hard in therapy. Since he is now losing some weight he has been moving around a lot easier. He had gained so much weight so fast with his G tube that he quit moving around. It is great to see him up in a gait trainer.

Cognitively he is moving ahead leaps and bounds. He is more aware of things than ever before. He now enjoys TV. This is major. This is something brand new. Before he did not care what was on TV or if it was even on. At times he would become over stimulated with the noise and cry. Now he picks what he wants to watch. He LOVES Disney JR!! Mickey, Jake, Sophia and Doc Mcstuffins are his favorites. If we ask him what he wants to watch and start to list his shows he will say "ya" when we say the right one. He also knows if that is the one we are turning on. I accidentally turned on the wrong show and he started screaming until I changed it to the right show. He also interacts with the shows. When Mickey asks  "Do you want to come inside my clubhouse?" Aaron yells "Ya". It is amazing.  He also answers Jake about being in his pirate gang.
He also interacts so much more with all of us. He and Nick have such a special bond. It is so sweet to watch them together. Nick is such a great big brother. He likes to play Plants vs Zombies with Aaron. When he asks Aaron if he wants to help him catch Zombies Aaron gets so excited. He yells "Ya" Seeing his face light up as Nick talks to him and seeing Nicks face at Aaron's response is precious.

He  is truly a miracle and God is doing amazing things in his life. I cant wait to see all that he will learn. I am enjoying every second I get to spend with this amazing little boy. I am no longer mourning what once was but am waiting to see what is to come.

catching zombies with Nick