Today my sweet little Taevon came home with his pants soaking wet and with his clothes all twisted around. It broke my heart. It seemed as if he was just dropped into his wheelchair at the last minute and put on the bus. His harness was over his arm instead of his shoulder and he was so crabby. I am just mad. He can't tell me what happened. He cant tell me why he is upset. He was also very hungry when he came home which makes me wonder if he was fed at the right time or even at all. He is supposedto be fed at 9:30 am so he shouldnt have been hungry at 11:20am. The nurse is wanting me to change his feeding schedule so she doesnt have to feed him at school. He eats every 3 hours and she is wanting him to go 5 hours between feeds. She told me he is only in school for 3 hours so he should be able to eat before and after school. Yes, he is only in school for 3 hours, but the bus picks him up at 7:15am and doesnt bring him home until 11:20am and that is four hours already. He gets up at 6:30 am and that is when he wants to eat so that is almost 5 hours. I am not changing his feeding schedule. They talk about how they are equipped to deal with all sorts of special needs and I was assured by the director of Special Education that his Gtube would not be a problem. My questions went unanswered today but I will be calling again in the morning until they are answered. It isn't right that people think children with special needs arent as important as those who don't. All of my children are important and deserve to be treated the same by others. They all mean the world to me and those who do not treat them all the same will be the ones that are losing out. These are amazing little boys and will change your life for the better if you let them.
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