School starts Wednesday. The closer it gets the higher my anxiety. Nicholas LOVES school and I do not worry about him as much as the others. He is able to tell me everything that goes on during his day. He was able to tell me in detail about the incident involvong the art sub where the principal had called and told me that he didnt think anything sexual had taken place between Nicholas and the sub but that he had dismissed him from the school. My other boys have can't tell me what goes on.
Keagan is doing great with his speech but he still has trouble explaining himself. He still has problems sequencing events and has yet to grasp time. Everything is "this morning". Aaron and Taevon are both non verbal.
Aaron has a lot of medical issues. He is blind and different sounds make him cry. He can't tell anyone that he isnt feeling well, that his blood sugar may be low or that his sodium level might be off, or that his body temp is dropping, that his ears or throat hurt. He can't tell me that they gave him the right amount of liquids that he did or didnt drink it all. I am just supposed to trust they will do everything right. The nurse last year dismissed his sleeping in class as a "growth spurt". She didnt feel the need to tell me he had been sleeping until the last day of school. He was sleeping because he was having seizures! The new nurse didnt even speak to Aaron and was not interested in his medical history. To be told by the drs that children like my sweet Aaron often die and that he is at a high risk for sudden death makes me nervous to have others in charge of his care. And when I have people that don't seem to care makes me want to keep him home.
Taevon also can't tell me about his day. I have to rely on the teachers to inform me of what he does during the day. He has only been with us for 2 weeks so I am still learning his sounds and cries. He is visually impaired and is so jumpy and hates to have people behind him. Are they going to make sure that people don't go behind him until he is able to learn to trust them. He gets tired of being in the same position for too long. Are they going to leave him in his wheelchair all day or are they going to make sure he gets moved around. My mind is going in a million different directions. I really just want to keep my sweet little angels at home. I do therapy and learning time all day long. I work with them all the time. I just want them to be safe and happy.
No comments:
Post a Comment