Aaron and Taevon

The results from the EEG were reviewed by Dr O and he wants to add some more medications. He said the EEG showed a lot more activity than the one from this past July. He is having many more seizures and they are lasting longer and longer. He continues to hold his breath and his lips turn blue. I have had to shake him at times to get him to take a breath. I am hoping that the new medication gets them under control.

Taevon has not been feeling very well. He came home from school on Wednesday and was very fussy. His teacher wrote the he had been fussy all morning so they fed him early and that it seemed to help. I fed him lunch and he took a nap. He got up from his nap and I fed him again. He threw up all over himself, me and the floor. He was very fussy for the rest of the night. He just wanted to sit in my lap and be rocked (which I loved). I tried to feed him again at bedtime and he threw up again. I gave him a little Pedialyte through the night and he was able to keep it down. All day Thursday I gave him small amounts of Pedialyte and he kept it all down. Friday morning he was in a much better mood and I started his feeds again. By the evening he was up to his full amount and doing great. These two boys go through so much everyday  and yet they are the happiest boys ever. I love them more than anything. I can't imagine my life without them.