Monday February 18, 2013
Aaron has begun to have more seizures back to back. Last night he had 4 in a row the first time and 3 the next time. It is awful to see his little body jerk and his arms shoot over his head. There is nothing I can do but try to hold his hand and talk to him. He stops breathing but so far just when he gets to the point where I really panic he takes a deep breath. I just want these meds to work. I cant leave him for a second. He pulls himself up on everyone and everything and falls over without warning due to the drop seizures. He will also just fall over when he is crawling. His poor little forehead always has a red mark. He doesn't want to be held, he wants to play. I can tell he feels dizzy. He shakes his head and will hit his head. I can't reason with him just to let me hold him and it is so hard to watch. Dr B increased his Depakote to 2 am, 1 afternoon and 2pm for 1 week then to 2 am, 2 afternoon and 2 pm. I am hoping that this med is going to work because so far he is tolerating it ok. Even though he is not feeling his best he is still giving kisses and still has a smile. What an angel!
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