Monday August 25, 2014
Aaron saw Dr C this morning. We talked about his heart rate which is lower than last visit and the fact that is temp has been very low (in the low 95's) We believe (hope) it is due to the increase in his seizure med Onfi. He has a very hard time tolerating this med and ended up in the hospital last time. I called his Neuro and we are going to start to decrease his Onfi and see if some or all of his symptoms go away. She also increased his Vimpat. Right now he is lethargic, cold (95.1 degrees) having seizures, having trouble holding his head up and and slumps to the side when sitting in is chair. I miss his giggles, hugs and kisses. I am praying that his med adjustments helps and he goes back to his happy self. I am so thankful for the amazing Drs taking care of my little boy.
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