I increased Aaron's Vimpat last night and he slept until 3:15 am!!!! He woke up in a good mood and was very vocal. I decreased his morning dose of Onfi by 5 mg. I am hoping that this makes a difference. In the past increasing his Vimpat has decreased his seizures. Onfi is the drug of choice for Lennox Gastaut and I wish he could tolerate it better. With all of his other medical issues it is hard to find meds he can take that don't interfere with other meds or exacerbate his other conditions. His Neuro would really like for him to be on the Ketogenic diet, but he is often hypoglycemic. There are other seizure meds but because he easily becomes acidic we are limited it what can be used.
He slept for about 3 hours this afternoon but was really not himself after his nap. His arms and legs are moving all the time and he is really drooling today. I think the Vimpat makes him feel dizzy. He seems better when he is lying down flat. Poor kid cant be like that because of his reflux and aspirating. I hope these med adjustments work soon. Even when he is feeling awful he smiles for me and it melts my heart!! I LOVE this sweet boy!!
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