trip to the dr

Thursday August 28, 2014

Aaron still isn't tolerating Onfi.  He is very lethargic and just wants to sleep. This morning he was very sleepy and crying. His body temp kept going up and down and his cheeks were very flushed. He started having little seizures and holding his breath. His fingernails and toenails turned purple We went and saw Dr C this morning He checked his ears, chest, heart and throat. Everything checked out ok and he thinks it is just the Onfi. I am supposed to call the Neuro tomorrow to let her know if he has improved. Since he is actually doing worse she will most likely decrease it again. I can't remember how long it took him to recover form this med but Dr C thinks it took some time. I hate seeing him not feeling well.

Even though it has been difficult managing all of his medical needs there is always another child sicker than Aaron. Seeing Aaron sick and all of the other kids at the clinic or hospital puts everything in perspective. Nothing matters but spending time with my family. Hopefully he will bounce back soon because I miss his sweet giggle.