911 again

Thursday March 14, 2013

It happened again...

Aaron got up this morning and he really wasn't himself. He was cold and a little lethargic. I gave him all his morning meds and he ate a few bites of breakfast. As he was drinking his pediasure he had a seizure. He recovered from it fairly well. About 10 minutes later he had a cluster of 5-6 tonic seizures and he wasn't looking very good. I called Dr C and he was going to be seen t 11am. Around 9:20 I knew we weren't going to make it until 11am. I picked Aaron up and called to make an appointment with whoever could see us right away. As I was waiting for the nurse to answer Aaron went limp in my arms. I yelled for Keagan to go upstairs and I laid Aaron in the floor. He was grey and not breathing. I started to panic but realized I was home alone with the kids. I called 911 and he took a little breath and then stopped again. This went on until the ambulance arrived. I couldn't think. I need someone to come over right away to be with the boys. I can't let Aaron go alone. He has too many issues. I need to explain everything to them. They arrive and he does not look good. My MIL arrives just as they are taking him to the ambulance. We get in the ambulance and they start his IV after only 2 tries. I am trying to explain everything and they ask what hospital. I say Lutheran and we are on our way with lights and sirens. They didn't take the time to buckle me in and the paramedic looks panicked. His heart rate is 125 VERY high for Aaron. He is so cold. He is very lethargic. He is so pale and mottled. His blood sugar is 43 (it was 67 at breakfast which is normal for Aaron). He looks at me and says "do you have any objection to going to PR... (not sure what he is saying. I am getting nervous, he seems nervous..I ask what that means and he says" PV North.. we need to get him somewhere right now and it is closer." I panic and tell him to go wherever they need to go. He continues to move around in the back of ambulance. He keeps saying Aaron's name and lifting up his eyes. It seems like it took forever to get there and we are in the ER. It again seems chaotic but everyone has a specific job. They are asking lots of questions I am telling them to call his drs. They tell me the xray shows pneumonia. Pneumonia?? He doesn't have a cough. He has only had a little runny nose for the last 2 days. I think it is his sodium level. They aren't sure. It is determined that he is still seizing just not showing any muscle response to it. He is given 2 doses of valium and he calms down. He has labs drawn and they do an EEG. He is put on a warmer blanket to get his temp up. They finally talk to Dr C (Aaron's reg Dr) and he is being admitted to PICU. We get up the the PICU and I talk to the Intensivist Dr P (from Aaron's regular hospital) We are talking about his meds and all of seizures. He says he has aspirated during his seizures and it has caused pneumonia. He is very sick. The xray shows a white areas in his right lung. Neuro comes and they start him on yet another seizure med Vimpat. He spikes a fever and is ordered a antibiotic. He is on oxygen, 10 liters at 100 %. They put him on a high flow cannula. The Dr says he may need to be put on a ventilator. He is getting breathing treatments every 4 hours. His oxygen levels are below 90. He doesn't look good. He gets an NG tube so he can take all of meds and for nutrition later. It is a very long night.