Saturday March 9, 2013
Aaron got up and was a little more alert today. The boys were getting haircuts (so lucky she comes to the house to cut their hair) and Aaron's temp started to drop. It was 96.6. Taevon got his hair cut first. I was feeding Tae and I looked at Aaron and his feet and legs were purple. I thought he had stopped breathing again. He was breathing, he was just VERY cold. I took his temp and it was 96. I wrapped him up in his warmer blanket and he fell asleep. I checked his temp because he felt so cold and it was down to 95.2. I called the Dr and they had him come right in to the office. The nurse took his temp and it was down to 94.6. Dr S (on call Dr) came in a rechecked his temp. It was the same 94.6. I know this is from the Onfi but because his heart rate was OK and he is still drinking they are going to leave his meds alone. It is hard to distinguish between the effects of all his seizures and an "Aaron episode". I just need to keep a close eye on him and call with any changes. I am so glad that we were able to come home. I feel horrible for the girl that cuts the boys hair. She probably won't want to come here again. So far Aaron is doing OK. His temp is still very low and he has slept for most of the day.
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