Aaron has started to have more seizures again. The Onfi seemed to help for awhile but now he is having multiple drop seizures again. He is still having a very hard time regulating his body temperature and is sleeping a lot. I am having trouble keeping it above 96 and Dr C would like it kept above 97 degrees. I am sure that this is because of the Onfi. I called the Neuro nurse this afternoon and they are having Aaron come into the office tomorrow morning, They also increased his bedtime dose of Onfi. I am very nervous about the increase but I know we need to get these seizures under control. I also know that he has amazing Drs and they are watching him closely and I am very thankful for all of them. Aaron is such a sweet little boy. I just want him to start feeling better.
so sweet
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