Aaron is doing better He is much more alert and has even played with his monkey and asked for music. Everyone here is so good with him. Anyone that comes in the room knows he likes his monkey and plays his music box for him. They know what he is trying to say and have learned his signs. He is much more comfortable here. He waves to everyone as the come in and out of his room and has even started to smile again. They were able to get him off oxygen during the night and so far he is doing great. He had a upper GI today and it did not show any reflux and he had a swallow study that did not show any aspirating. They said the tests were limiting and he was sitting up (Aaron likes to lay on the floor and drink) so they are thinking that a G tube will be in his best interest. This is not new as we have been talking about one for a few months with his drs. This will help with the aspirating and lower the risk of aspiration pneumonia. They are contacting Dr S (pediatric surgeon) to see if he can fit us in while we are here. I am so thankful that he is doing better. I miss his smile and giggle.
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