the school

Wednesday March 27, 2013

I got a call this morning from Aaron's school. He has not been a  school for a long time. His Dr sent a note stating that he will be out of school until we get his seizures under control. Besides that I am not comfortable with the school nurse at all. She has taken very little interest in Aaron and was worried about the diabetic kids snacks during his medical review. Really?? I am trying to tell you the signs of his crisis and explain his seizures and you are looking at  your phone?!? She also never attempted to see Aaron while at school to get some sort of baseline on his health. Anyways. The teacher calls (she has never seen Aaron) and tells me that she needs to update his IEP and I need to come to the school today and sign the papers. I  tell her that Aaron has just gotten out of the PICU after 11 days and that he is having surgery today. She tells me it will be real quick if I can just come to the school. I tell her that he has a NG Tube and IV pole and that he is having surgery, She says "Well I am not trying to be rude or pushy but I can bring the papers to your car" Are you serious. My child is sick and getting ready to go into surgery and all you can think about are some papers. I let her know that I was not coming to the school today. She did not seem very happy but she didn't really have a choice. My kids come before some paperwork. I am very disappointed with the school system. It seems like paperwork takes priority over the welfare of these special little kids.