Aaron is in the PICU. The nurses are amazing. They do so many little extra things and are super friendly. It is about patient care and not just getting their job done. The are wonderful with my precious little angel. I just wish that Dr C was here taking care of Aaron. He knows Aaron.
Aaron looks awful. He is so pale and there are so many wires and tubes. They did another chest xray and this one was even worse. The entire lung was white and it had shifted. There were no breath sounds. They increased his breathing treatments to every 2 hours, addded Mucca Mist and CPT. They also placed a Central Line in his right thigh. He is now getting TPN through this line. He is still running a temp so they changed his antibiotic. He is needing a lot of oxygen and the Dr said he will probably need to be put on a ventilator becuase he is not breathing very well. Right now he is on a high flow nasal cannula but his oxygen levels are still very low.
I talked with Neuro and she is going to leave his Vimpat the same and she had me fill out the paperwork for the new med Sabril. We also discussed he Ketogenic Diet but this is not an option for Aaron due to his Hypoglycemia. She brought me some information on the Vagal Nerve Stimulator but I am not sure about that right now.
He was finally diagnosed with Aspiration Pneumonia. They did a bronchoscopy and got a lot of the stuff out of his lung. He is still needing a lot of oxygen but his oxygen levels are up to 80% now. He is still sleeping. I just want to hold my sweet little boy.
My poor little angel is so sick. He has so many tubes and wires and lots of meds to help him get better We are praying that he will not need to be put on a ventilator.
central line
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