Thursday October 25, 2012
Dr C came by around 4:30pm to see Aaron. He was glad to see him feeling and doing so well. He said wait to see what the Intesivist (Dr Ch) says but he thought he looked really good. So 5pm comes and goes. It is now after 6pm and we still haven't see Dr Ch. I talk to the nurse and she says that Dr Ch now says he is not on Aaron's case anymore that he signed off. WHAT!?! Dr C said Dr Ch was in charge and now Dr CH sayd Dr C is in charge. Who is taking care of my baby? The nurse was so confused and she was asking me what to do. I told her to call Dr C and let him know. She did and Dr L (on call Dr) came to see Aaron and discharged him. He kept apologizing..but it wasn't their fault. The nurses even thought Dr Ch was still in charge. Oh well he is home and doing great. He is one tough little boy. No matter how much he endures he always has a smile in the end. I love this sweet angel and am so thankful he is feeling better.
Sunday, October 28, 2012
Feeling better
Thursday October 25, 2012
My sweet baby is back. He is doing great. He has been eating and drinking all day. I haven't seen him like this for so long. He is talking, signing and following simple commands. He has been so active and has even pulled up to a stand a few times today. He has gained some more weight and he has maintained his temp with no problems. He has decided that he doesn't need his NG tube anymore and has pulled it out twice.
We are waiting for his Intensivist to come and see him so they can turn down his feeds and give him something to poop. We have been waiting for most of the day and he still hasn't come. The nurse said she called and he was supposed to be here after lunch. He was on the floor but he never saw Aaron. Now she says he will be here at 5pm. I guess they will turn his feeds dowm and maybe we will be discharged tomorrow. I was hoping it would be today.
My sweet baby is back. He is doing great. He has been eating and drinking all day. I haven't seen him like this for so long. He is talking, signing and following simple commands. He has been so active and has even pulled up to a stand a few times today. He has gained some more weight and he has maintained his temp with no problems. He has decided that he doesn't need his NG tube anymore and has pulled it out twice.
We are waiting for his Intensivist to come and see him so they can turn down his feeds and give him something to poop. We have been waiting for most of the day and he still hasn't come. The nurse said she called and he was supposed to be here after lunch. He was on the floor but he never saw Aaron. Now she says he will be here at 5pm. I guess they will turn his feeds dowm and maybe we will be discharged tomorrow. I was hoping it would be today.
Feeling better tonight
Wednesday October 24, 2012
Aaron is about 80%!! He has been eating applesauce. He has even started drinking some chocolate Pediasure. We have been playing and he has been up moving around in his crib. It is great to see him feeling better. I love this little boy so much!! I cant believe the change in him in just a few short hours. He has even started to make his adorable sounds. I have missed his smiling face!!
Aaron is about 80%!! He has been eating applesauce. He has even started drinking some chocolate Pediasure. We have been playing and he has been up moving around in his crib. It is great to see him feeling better. I love this little boy so much!! I cant believe the change in him in just a few short hours. He has even started to make his adorable sounds. I have missed his smiling face!!
Answered prayers
Wednesday October 24, 2012
Aaron has moved to the Peds floor!!!
He is doing so much better that his Intensivist said he could be monitored on Peds. No more wires except for his NG tube and IV!! I am able to hold him and he has even been sitting up playing. It is so good to see him smiling and he has even signed to eat and drink!!
Aaron has moved to the Peds floor!!!
He is doing so much better that his Intensivist said he could be monitored on Peds. No more wires except for his NG tube and IV!! I am able to hold him and he has even been sitting up playing. It is so good to see him smiling and he has even signed to eat and drink!!
Day 3
Wednesday October 24, 2012
Aaron has started to improve. His temp has been great and he is off the warmer blanket. His heart rate and respirations are in the normal range and he is starting to wake up for longer periods of time. He gained 1.5 pounds !! I have been able to hold him for a few minutes at a time and he has even smiled today. He is still having seizures so his neuro has decreased another 5mg of his Onfi today. He will stay on this dose for a week then he will be done. Everyone is thinking that this was all because of the Onfi!! (It is what we were all hoping for). Hopefully the Keppra will control his seizures and he will be back to his silly happy self soon.
Aaron has started to improve. His temp has been great and he is off the warmer blanket. His heart rate and respirations are in the normal range and he is starting to wake up for longer periods of time. He gained 1.5 pounds !! I have been able to hold him for a few minutes at a time and he has even smiled today. He is still having seizures so his neuro has decreased another 5mg of his Onfi today. He will stay on this dose for a week then he will be done. Everyone is thinking that this was all because of the Onfi!! (It is what we were all hoping for). Hopefully the Keppra will control his seizures and he will be back to his silly happy self soon.
PICU day 2
Tuesday October 23, 2012
Aaron has tolerated his feeds so far. They have increased them to 40cc/hr, but he still lost over a pound. He is still sleeping, only waking for a few seconds at a time. His heart rate is better but his temp is still fluctuating. He is continuing to have seizures but his respirations have finally become normal.The nurses up here have been wonderful. They have fallen in love with Aaron and his adorable curls. He is such a sweet little angel that it is so easy to do. I got to hold him for a few minutes while his bed was changed and it was pure heaven. I didn't want to put him down. I feel so lucky to have such an amzing team of drs taking care of Aaron, and I know they are doing all they can for my little boy.
Aaron has tolerated his feeds so far. They have increased them to 40cc/hr, but he still lost over a pound. He is still sleeping, only waking for a few seconds at a time. His heart rate is better but his temp is still fluctuating. He is continuing to have seizures but his respirations have finally become normal.The nurses up here have been wonderful. They have fallen in love with Aaron and his adorable curls. He is such a sweet little angel that it is so easy to do. I got to hold him for a few minutes while his bed was changed and it was pure heaven. I didn't want to put him down. I feel so lucky to have such an amzing team of drs taking care of Aaron, and I know they are doing all they can for my little boy.
Seizures
Monday October 22, 2012
Aaron has had more seizures over the last few hours. He has been seen by his Endo, Intensivist and his Neuro. His Neuro has decided to take him off of the Onfi quicker. He has decreased another 5mg daily. He is keeping his Keppra schedule the same. This sweet little boy has been through so much and it is so hard to see him so sick. I just want to hold and rock him. His temp has started to come up a little but he still needs to be on the warmer blanket for now.
Aaron has had more seizures over the last few hours. He has been seen by his Endo, Intensivist and his Neuro. His Neuro has decided to take him off of the Onfi quicker. He has decreased another 5mg daily. He is keeping his Keppra schedule the same. This sweet little boy has been through so much and it is so hard to see him so sick. I just want to hold and rock him. His temp has started to come up a little but he still needs to be on the warmer blanket for now.
Apnea
This is by far the worst hospital stay ever. Aaron's vital signs were not good for such a long time and his monitors were constantly going off. I think they changed the parameters twice. The worst sounds were during his periods of Apnea. It was terrifing. Wondering how long they were going to last constantly watching the numbers change and wishing they would get better. I felt so helpless watching my sweet little angel struggle and all I wanted to do was hold him.
Finally....
His vitals are starting to improve and he has not had a Apnea episode for the last 2 hours. I think I have prayed more today than I have in my whole life.
Finally....
His vitals are starting to improve and he has not had a Apnea episode for the last 2 hours. I think I have prayed more today than I have in my whole life.
Monday, October 22, 2012
NG tube
Monday October 22, 2012
Aaron has not been eating and drinking for about a month. Over the last few days he has not eaten and has only taken in about 18-23 ounces of fluids. This is not typical at all. Aaron always wants to drink and he loves to eat yogurt and bananas. He has been losing a lot of weight. At his endo appointment September 13th he weighed 43 pounds. He went to the Dr because he was not feeling well and he was down to 40 pounds 10 ounces on September 24th. He went back to the Dr on Saturday October 10th and he was 40 pounds 11 ounces. He went back to the Dr on October 13th and he was down to 40 pounds. At his next appointment on Thursday October 18th he weighed 37 pounds 8 ounces. Today he was weighed at Dr C's office and he was down to 37 pounds 2 ounces.
While in the PICU today they decided to place a NG tube for his nutrition and meds. He was sleeping and at first didn't seem to respond but after a few seconds he really gave them a workout. He never cried he just tried to push them away and when that didn't work he used his feet. They couldn't believe how flexible he was. Once they were done he was fine and went right back to sleep. He has been tolerating his feeds with no problems and they have been able to increase them all evening. Hoping he starts feeling better soon. I miss his smile!!
Aaron has not been eating and drinking for about a month. Over the last few days he has not eaten and has only taken in about 18-23 ounces of fluids. This is not typical at all. Aaron always wants to drink and he loves to eat yogurt and bananas. He has been losing a lot of weight. At his endo appointment September 13th he weighed 43 pounds. He went to the Dr because he was not feeling well and he was down to 40 pounds 10 ounces on September 24th. He went back to the Dr on Saturday October 10th and he was 40 pounds 11 ounces. He went back to the Dr on October 13th and he was down to 40 pounds. At his next appointment on Thursday October 18th he weighed 37 pounds 8 ounces. Today he was weighed at Dr C's office and he was down to 37 pounds 2 ounces.
While in the PICU today they decided to place a NG tube for his nutrition and meds. He was sleeping and at first didn't seem to respond but after a few seconds he really gave them a workout. He never cried he just tried to push them away and when that didn't work he used his feet. They couldn't believe how flexible he was. Once they were done he was fine and went right back to sleep. He has been tolerating his feeds with no problems and they have been able to increase them all evening. Hoping he starts feeling better soon. I miss his smile!!
Dr to peds to ICU
Monday October 22, 2012
I took Aaron in to see Dr C so he could see how he was doing. He sent us to the peds floor. Once he was there and they were monitoring him his heart rate dropped into the 40's and his respirations began to drop. Once they hit 12 he was rushed to the PICU. It was very scary for awhile and all I could do was watch his monitors. He had a few consults and will have his neuro consult in the morning. They are talking about putting in a G-tube so he can get his nutrition and meds since he hasn't really eaten in over a month. He has a NG tube and is getting some formula now. Hopefully he will start feeling better. His temp and heart rate have started to increase but he still has a way to go. He is sleeping now and looks like an angel.
I took Aaron in to see Dr C so he could see how he was doing. He sent us to the peds floor. Once he was there and they were monitoring him his heart rate dropped into the 40's and his respirations began to drop. Once they hit 12 he was rushed to the PICU. It was very scary for awhile and all I could do was watch his monitors. He had a few consults and will have his neuro consult in the morning. They are talking about putting in a G-tube so he can get his nutrition and meds since he hasn't really eaten in over a month. He has a NG tube and is getting some formula now. Hopefully he will start feeling better. His temp and heart rate have started to increase but he still has a way to go. He is sleeping now and looks like an angel.
Friday, October 19, 2012
rough night
Friday October 19, 2012
Aaron is still not feeling well. He started his Keppra last tonight and I decreased his Onfi by 5mg this morning. I am hoping that this works and he starts feeling better. He was up for most of the night crying and not wanting to drink. I have tried everything, different flavors of pediasure, apple juice (his favorite), pedialyte, bottles, sippy cups and nothing seems to be working. He finally had a wet diaper and started to drink some around 2am. I was supposed to call Dr C at 8:30am but we were sleeping. I felt bad because they had been calling me since before 8am. Dr C said he sounds like he is doing a little better. He wants me to call back around 11:30 to let him know how he doing. My poor baby, I wish there was something I could do to make him feel better. He does seem to be in a better mood this morning and has been drinking some so I hope this continues.
Aaron is still not feeling well. He started his Keppra last tonight and I decreased his Onfi by 5mg this morning. I am hoping that this works and he starts feeling better. He was up for most of the night crying and not wanting to drink. I have tried everything, different flavors of pediasure, apple juice (his favorite), pedialyte, bottles, sippy cups and nothing seems to be working. He finally had a wet diaper and started to drink some around 2am. I was supposed to call Dr C at 8:30am but we were sleeping. I felt bad because they had been calling me since before 8am. Dr C said he sounds like he is doing a little better. He wants me to call back around 11:30 to let him know how he doing. My poor baby, I wish there was something I could do to make him feel better. He does seem to be in a better mood this morning and has been drinking some so I hope this continues.
Nick's conference
Thursday October 18, 2012
Nick's conference was tonight. He was so excited for me to go and talk to his teacher. She loves him. She said he is such a joy to have in class! She said he is doing great and that he is a little sponge. She said he has a wealth of information and she loves to listen to him talk and explain things. She said he was telling the class about static electricity and showing the experiments that we had done. The only things he needs to work on his doing his personal best ALL the time. He is is such a rush to get things done that he doesn't always do his best work on coloring and with his handwriting. She said he is so good in math and science and just absorbs all of the science she gives him. He is reading above his grade level and she said that he has such great expression that she loves to hear him read. She also said that she can't wait for him to be in the school plays. He is such a sweet little boy and he loves to learn!! I am so proud of him!!
Nick's conference was tonight. He was so excited for me to go and talk to his teacher. She loves him. She said he is such a joy to have in class! She said he is doing great and that he is a little sponge. She said he has a wealth of information and she loves to listen to him talk and explain things. She said he was telling the class about static electricity and showing the experiments that we had done. The only things he needs to work on his doing his personal best ALL the time. He is is such a rush to get things done that he doesn't always do his best work on coloring and with his handwriting. She said he is so good in math and science and just absorbs all of the science she gives him. He is reading above his grade level and she said that he has such great expression that she loves to hear him read. She also said that she can't wait for him to be in the school plays. He is such a sweet little boy and he loves to learn!! I am so proud of him!!
Dr appts
Thursday October 19, 2012
Aaron is still not feeling well. He went to see the neurologist this morning. Dr O said the Onfi is not working for him so we are going to start to wean him off of it while starting him on Keppra. He said his EEG was VERY abnormal and he is so surprised that we are not seeing more visible signs of seizures. He just stares, or looks off to the side. Sometimes his eyes roll up into his head, but we have never seen any more than that. That is all they saw on his 23 hour EEG too. He has been sleeping more, sometimes 18-20 hours a day. His balance is off and he is no longer pulling to a stand or taking steps. When he crawls he falls over to the side and sometimes his arms just give out. It is so hard to see him struggle and not feel good. I am hoping that the Keppra can get his seizures under control so he can begin feeling better.
Aaron has not been eating (has not eaten in over a month). He has not been wanting to drink and that is dangerous for him since he has Diabetes Insipidus. His temperature has slowly been dropping since he was discharged from the hospital. It has begun to fall below 96 degrees and was even as low as 94.8 this morning. It is taken longer for his temp to come back up and it is not coming up as high. They would like it to stay above 97 degrees. So it was off to see Dr C. Everyone is worried about Aaron. We were 30 minutes early for our appointment and they called us right back. They didn't even have his chart when the nurse came in the room to see how he was doing. He has lost 3 pounds since Saturday and he looks awful. His heart rate was good and his mouth was moist so he didn't need to go to the PICU. Dr C really wants to keep him out of the hospital (me too!!!) so he wanted to see how he did through the night. We were to push fluids and to continue to use his warmer blanket. I am to call first thing in the morning to let him know how he did so he could decide if he should be admitted for fluids. Dr C did say that maybe it is all the seizures making him so tired and not wanting to eat and drink. That would be great news as the seizures can be controlled with the right meds. He said if that is not the case then he Dr P and Dr C (both from the PICU) will try and determine what is going on with my sweet angel.
can't wait to see my baby up playing again
Aaron is still not feeling well. He went to see the neurologist this morning. Dr O said the Onfi is not working for him so we are going to start to wean him off of it while starting him on Keppra. He said his EEG was VERY abnormal and he is so surprised that we are not seeing more visible signs of seizures. He just stares, or looks off to the side. Sometimes his eyes roll up into his head, but we have never seen any more than that. That is all they saw on his 23 hour EEG too. He has been sleeping more, sometimes 18-20 hours a day. His balance is off and he is no longer pulling to a stand or taking steps. When he crawls he falls over to the side and sometimes his arms just give out. It is so hard to see him struggle and not feel good. I am hoping that the Keppra can get his seizures under control so he can begin feeling better.
Aaron has not been eating (has not eaten in over a month). He has not been wanting to drink and that is dangerous for him since he has Diabetes Insipidus. His temperature has slowly been dropping since he was discharged from the hospital. It has begun to fall below 96 degrees and was even as low as 94.8 this morning. It is taken longer for his temp to come back up and it is not coming up as high. They would like it to stay above 97 degrees. So it was off to see Dr C. Everyone is worried about Aaron. We were 30 minutes early for our appointment and they called us right back. They didn't even have his chart when the nurse came in the room to see how he was doing. He has lost 3 pounds since Saturday and he looks awful. His heart rate was good and his mouth was moist so he didn't need to go to the PICU. Dr C really wants to keep him out of the hospital (me too!!!) so he wanted to see how he did through the night. We were to push fluids and to continue to use his warmer blanket. I am to call first thing in the morning to let him know how he did so he could decide if he should be admitted for fluids. Dr C did say that maybe it is all the seizures making him so tired and not wanting to eat and drink. That would be great news as the seizures can be controlled with the right meds. He said if that is not the case then he Dr P and Dr C (both from the PICU) will try and determine what is going on with my sweet angel.
Tuesday, October 16, 2012
Feeding tubes
Tuesday October 16, 2012
Taevon had his GI appointment this morning. I was pushing T in his wheelchair, carrying Aaron and trying to keep Keagan from running off. I am sure we made people laugh!! We finally got in to the medical building and the fire alarm started going off. We had to go back out into the parking garage until they cleared the the building. It probably only took 10 minutes but it seemed like forever. We finally got to see the Dr. He showed me how to change T's Mickey Button and it is so easy. It needs to be changed every 3 months. His really needed to be changed. The balloon used to hold it in place should have 5cc of water, T's only had 3cc! I am so glad it held on through the weekend!! Since Aaron was in the hospital I had to have someone come to the house and stay with the boys, someone come to the hospital and stay with Aaron while I went home and fed T every 3 hours!! I can't wait until my mom learns how to feed T!! I thought everything was going well and now Aaron is throwing up. I sure hope this doesn't mean another hospital stay...
Taevon had his GI appointment this morning. I was pushing T in his wheelchair, carrying Aaron and trying to keep Keagan from running off. I am sure we made people laugh!! We finally got in to the medical building and the fire alarm started going off. We had to go back out into the parking garage until they cleared the the building. It probably only took 10 minutes but it seemed like forever. We finally got to see the Dr. He showed me how to change T's Mickey Button and it is so easy. It needs to be changed every 3 months. His really needed to be changed. The balloon used to hold it in place should have 5cc of water, T's only had 3cc! I am so glad it held on through the weekend!! Since Aaron was in the hospital I had to have someone come to the house and stay with the boys, someone come to the hospital and stay with Aaron while I went home and fed T every 3 hours!! I can't wait until my mom learns how to feed T!! I thought everything was going well and now Aaron is throwing up. I sure hope this doesn't mean another hospital stay...
Discharged!!
Sunday October 14, 2012
Aaron was discharged around 7pm tonight. I am so glad that he is feeling better, but something is still off with him. He has a neuro appt this week and sees Dr C next week. My poor baby has been so constipated since he started his new med and vitamin with Iron. He had to have a glycerin chip and it did not work. He then had to have a enema and he was not a happy little boy. He was so mad and boy can he hold a grudge!!. It took him about 45 minuted before he would even let me pick him up. He had a scowl on his face for the longest time. He is so funny and has so much personality. I love this little boy!! Hopefully he will continue to get better and we will stay out of the hospital.
feeling better!!!!
Aaron was discharged around 7pm tonight. I am so glad that he is feeling better, but something is still off with him. He has a neuro appt this week and sees Dr C next week. My poor baby has been so constipated since he started his new med and vitamin with Iron. He had to have a glycerin chip and it did not work. He then had to have a enema and he was not a happy little boy. He was so mad and boy can he hold a grudge!!. It took him about 45 minuted before he would even let me pick him up. He had a scowl on his face for the longest time. He is so funny and has so much personality. I love this little boy!! Hopefully he will continue to get better and we will stay out of the hospital.
feeling better!!!!
Peds floor
Sunday October 14, 2012
Aaron is doing better and is now on the regular peds floor. He is still sleeping a lot but he looks so much better. He is keeping his temp up without the warmer and he has started to drink. He is still getting his antibiotic (rocefen) and his solu cortef. He is still not feeling so well, he hasn't even tried to pull out his IV. He has been awake a little more today but he hasn't wanted to sit up and play. Something is off with him, I can't explain it I just know something is not right with Aaron. I love his pediatrician. Dr C. even called (he was not on call this weekend) just to see how Aaron was doing. Dr W (on call Dr) said he said he was worried about Aaron and just wanted me know that he had called. This is such a great group of Drs and I feel very lucky to have them treating all of my boys.
Aaron is doing better and is now on the regular peds floor. He is still sleeping a lot but he looks so much better. He is keeping his temp up without the warmer and he has started to drink. He is still getting his antibiotic (rocefen) and his solu cortef. He is still not feeling so well, he hasn't even tried to pull out his IV. He has been awake a little more today but he hasn't wanted to sit up and play. Something is off with him, I can't explain it I just know something is not right with Aaron. I love his pediatrician. Dr C. even called (he was not on call this weekend) just to see how Aaron was doing. Dr W (on call Dr) said he said he was worried about Aaron and just wanted me know that he had called. This is such a great group of Drs and I feel very lucky to have them treating all of my boys.
ICU
Saturday October 13, 2012
Aaron is in the ICU. I woke him up this morning (very unusual since he is always up early) and he was so cold and lethargic. I called and took him right in to see the Dr. His heart rate was down and his temp was only 92.8. He was taken right to the PICU. My poor little boy does not feel well. He is getting lots of antibiotics and had some labs done. Once they get his labs back they will decide what needs to be done but for now he is getting his Solu Cortef and on a warmer blanket. I hate not being able to hold him but he needs to warm up a lot before I can get him out of bed. Hopefully I will be able to cuddle and love on my sweet little angel soon.
Aaron is in the ICU. I woke him up this morning (very unusual since he is always up early) and he was so cold and lethargic. I called and took him right in to see the Dr. His heart rate was down and his temp was only 92.8. He was taken right to the PICU. My poor little boy does not feel well. He is getting lots of antibiotics and had some labs done. Once they get his labs back they will decide what needs to be done but for now he is getting his Solu Cortef and on a warmer blanket. I hate not being able to hold him but he needs to warm up a lot before I can get him out of bed. Hopefully I will be able to cuddle and love on my sweet little angel soon.
Friday, October 12, 2012
My talk with the principal
Friday October 12, 2012
I had a talk with the principal about the events of yesterday, I guess it is just me becuase he didn't really see it as a problem. He stated the parents are comfortable with the way the children are dealt with and that he could not get into specifics about another child's plan. I told him I was well aware of children and their care plans as I had worked in a residential teatment facility for close to 9 years. I told him what was unacceptable was an adult in a childs face with their finger pointed. He told me he was sorry I was offended but that is how they deal with behaviors. I am appalled at the lack of care or concern for these children. If this is how children are treated in front of a parent what goes on in the halls or classrooms. No parent would ever think that it was ok to for someone to act that way toward their child. My child will be pulled out of the school and taught at home and my other children will not attend that school.
I will do anything for this angel
I had a talk with the principal about the events of yesterday, I guess it is just me becuase he didn't really see it as a problem. He stated the parents are comfortable with the way the children are dealt with and that he could not get into specifics about another child's plan. I told him I was well aware of children and their care plans as I had worked in a residential teatment facility for close to 9 years. I told him what was unacceptable was an adult in a childs face with their finger pointed. He told me he was sorry I was offended but that is how they deal with behaviors. I am appalled at the lack of care or concern for these children. If this is how children are treated in front of a parent what goes on in the halls or classrooms. No parent would ever think that it was ok to for someone to act that way toward their child. My child will be pulled out of the school and taught at home and my other children will not attend that school.
Precious gifts
Thursday October 11, 2012
I had Taevon's IEP today. Overall it went well and I am happy with his goals. I am still considering homeschooling my boys and today made it look like the best option. I feel like there is nobody standing up for kids, especially those with special needs. While I was in the office waiting for our meeting I witnessed something so sad and wrong. A little girl was brought into the office by two adults holding her under her arms. There was another adult (custodian) walking behind them. The little girl dropped to her knees once she was inside the office. The custodian asked the teacher/aide if she wanted her to call someone (a male name). The tone of her voice was not pleasant and I would never want anyone to talk like that in front of any of my children. The little girl reached her arm out to swat/slap at the teachers leg. (she was on her hands and knees and all of the adults were standing up around her). The teacher moved her leg back and she was not touched. All of a sudden the custodian got down on her knees and got in the little girls face. She had her finger pointed in this child's face. She said in "I will not let you hit (teachers name)" and continued to keep her finger in her face while starring at this child. I could not believe the tone of voice that was used and felt like she was attempting to intimidate this child. I am still wondering why a custodian is involved with the children. As a parent of 3 special needs children I have NEVER had a custodian be apart of any of my children's IEPS. I have never discussed my child's needs, wants, challenges with a custodian and I do not want them attempting to discipline my child. If that wasn't enough a few minutes later another child was brought into the office by 2 custodians (the woman from before and a male). She was placed into a room and the door was shut. The male was pleasant and did not raise his voice while the woman was still being rude. This child walked into the office without help, was quiet and calm. She went into the room with no problems and did not object when the door was closed. She stood at the door and as looking out the window. The woman asked the other custodian if she had been told to sit down in a tone that should never be used with children. The male stated she had been told that she could sit or stand. The woman says "well she can't look out the window" in the same offensive tone. The male opened the door and told this child she needed to sit down, she complied. The woman then went over and looked in the window. I was finally called back for my meeting. I had problems staying focused as I wondered about those children. Who is standing up for these children? Is anyone listening at home? Is anyone talking to the school about this? Why are they being treated like this? Why are custodians involved in the children's care? Why would someone attempt to intimidate a child? As a parent of a special needs child with behavior problems I am well aware of the frustrations/challenges of raising these special kids. But I will not allow my children to be treated in such awful way. I often wonder why some people have children. Why some parents or other family members give kids excuses for poor behavior. Is it because they don't know how to parent the child or is it just easier to give an excuse and then dismiss the behavior. In the end it is the child that will suffer if they have been allowed to act a certain way because everyone has said the can't help it for this reason or that reason. It is so sad that some people are always looking for the easy way out. It is also sad that when people have more than one child they decide they have a favorite. It disgusts me watching one child be ignored and the world revolving around the favorite and nobody stepping in for the other. My children are my whole world and I can't imagine allowing someone (boyfriend, husband, friend) calling my child names. I wish everyone would stand up for their kids and put them first. They are such precious gifts and need to be treated so much better. Children are a lot of work but so worth all of the effort. It is the most rewarding job I have ever had and I treasure each moment with all of my sweet angels.
love these boys more than anything
I had Taevon's IEP today. Overall it went well and I am happy with his goals. I am still considering homeschooling my boys and today made it look like the best option. I feel like there is nobody standing up for kids, especially those with special needs. While I was in the office waiting for our meeting I witnessed something so sad and wrong. A little girl was brought into the office by two adults holding her under her arms. There was another adult (custodian) walking behind them. The little girl dropped to her knees once she was inside the office. The custodian asked the teacher/aide if she wanted her to call someone (a male name). The tone of her voice was not pleasant and I would never want anyone to talk like that in front of any of my children. The little girl reached her arm out to swat/slap at the teachers leg. (she was on her hands and knees and all of the adults were standing up around her). The teacher moved her leg back and she was not touched. All of a sudden the custodian got down on her knees and got in the little girls face. She had her finger pointed in this child's face. She said in "I will not let you hit (teachers name)" and continued to keep her finger in her face while starring at this child. I could not believe the tone of voice that was used and felt like she was attempting to intimidate this child. I am still wondering why a custodian is involved with the children. As a parent of 3 special needs children I have NEVER had a custodian be apart of any of my children's IEPS. I have never discussed my child's needs, wants, challenges with a custodian and I do not want them attempting to discipline my child. If that wasn't enough a few minutes later another child was brought into the office by 2 custodians (the woman from before and a male). She was placed into a room and the door was shut. The male was pleasant and did not raise his voice while the woman was still being rude. This child walked into the office without help, was quiet and calm. She went into the room with no problems and did not object when the door was closed. She stood at the door and as looking out the window. The woman asked the other custodian if she had been told to sit down in a tone that should never be used with children. The male stated she had been told that she could sit or stand. The woman says "well she can't look out the window" in the same offensive tone. The male opened the door and told this child she needed to sit down, she complied. The woman then went over and looked in the window. I was finally called back for my meeting. I had problems staying focused as I wondered about those children. Who is standing up for these children? Is anyone listening at home? Is anyone talking to the school about this? Why are they being treated like this? Why are custodians involved in the children's care? Why would someone attempt to intimidate a child? As a parent of a special needs child with behavior problems I am well aware of the frustrations/challenges of raising these special kids. But I will not allow my children to be treated in such awful way. I often wonder why some people have children. Why some parents or other family members give kids excuses for poor behavior. Is it because they don't know how to parent the child or is it just easier to give an excuse and then dismiss the behavior. In the end it is the child that will suffer if they have been allowed to act a certain way because everyone has said the can't help it for this reason or that reason. It is so sad that some people are always looking for the easy way out. It is also sad that when people have more than one child they decide they have a favorite. It disgusts me watching one child be ignored and the world revolving around the favorite and nobody stepping in for the other. My children are my whole world and I can't imagine allowing someone (boyfriend, husband, friend) calling my child names. I wish everyone would stand up for their kids and put them first. They are such precious gifts and need to be treated so much better. Children are a lot of work but so worth all of the effort. It is the most rewarding job I have ever had and I treasure each moment with all of my sweet angels.
Monday, October 8, 2012
Scooby Doo
Saturday October 6, 2012
LOVE this little boy!!
my sweet angels!
Keagan had his birthday party today. He had so much fun. He LOVES Scooby Doo and was so excited about his Scooby cake.
Tuesday, October 2, 2012
Keagan
Happy 5th Birthday Keagan!!
I can't believe that you are 5! Time is going so fast. You are such a special little boy and I love you so much. Your sweet smile and cute dimples make me smile. I love your laugh and you melt my heart whenever you ask for a "hug n a dis". You my sweet boy are one of my greatest joys and I am so thankful for you. I can't imagine my life without you and I thank God everyday for you. I am excited to see all that you will accomplish this year. I love you!!
I can't believe that you are 5! Time is going so fast. You are such a special little boy and I love you so much. Your sweet smile and cute dimples make me smile. I love your laugh and you melt my heart whenever you ask for a "hug n a dis". You my sweet boy are one of my greatest joys and I am so thankful for you. I can't imagine my life without you and I thank God everyday for you. I am excited to see all that you will accomplish this year. I love you!!
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