Aaron saw Dr K today. We discussed his seizures and all of his meds. She decided not to add another med which made me very happy. Instead she increased his Sabril to 500 mg BID. He can safely go up to 1500mg BID. We also talked about the Ketogenic Diet. She decided to wait on that since he can be hypoglycemic at times and because he has no pituitary gland. She said the diet makes your body think it is starving which causes it to release more Cortisol. Unfortunately Aaron's body does not produce enough cortisol anyways and he would be stressed out. She also encouraged us to think about the VNS. She said it was an outpatient procedure and LGS kids usually have very good results. I am still not sure and want to talk to Dr C about it first. I am praying that the med increase works and his seizures become under control again.
