Friday
Aaron is really sick. I wiah they would have listened to me the other day. I kept telling them he needed more water but the dietician would not listed. One of the nurses came back and siad "well its not that she doesnt believe you"...What?!? not believe me?? I know Aaorn and i knew something was off. They called in his Intensivist Dr P. He did some labs. He knew that he was running a temp and was tachycardic. He was dehydrated and his co2 was VERY low (at 9). He oredered a bolus of 250ml and sodium bicarbonate. He will do labs again in the morning.
Aaron is having a lot of seizure activity. We counted over 25 just this evening. he is starting to feel better after the water and sodium bicarbonate. The dietician is still not understanding tht if she would have listened to me earlier he wouldnt have been so sick. So frustrating when someone thinks they know everything about your child beacause they are in charge of the diet.
The top pic is Aaron when I was telling them tht he wasn't feeling well and needed more water. This was taken after his labs that showed he was severly dehydrated and his co2 was only 9. The dietician assured me that he was only getting used to the diet.
The bottom is later in the evening after he got the bolus of water and the sodium bicarbonate. His temp was still elevated as was his heart rate, but he was starting to feel better.
She should have listened tome.. Even after all that she still was not understanding that a lot of this could have been prevented. I tried to expalin that Aaron is a complex child and that I knew what I was talking about. She just kept telling me that he was doing fine on the doet. I tried to tell her I was not questioning the diet or her expertise in the diet, but tht I know Aaron and I knew something wasnt right. She didn't really care and dismissed me. Very frustrating.
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